Assembly Actions -
Lowercase Senate Actions - UPPERCASE |
|
---|---|
Feb 22, 2010 |
print number 9936a |
Feb 22, 2010 |
amend and recommit to health |
Feb 12, 2010 |
referred to health |
Assembly Bill A9936
2009-2010 Legislative Session
Sponsored By
ROSENTHAL
Archive: Last Bill Status - In Assembly Committee
- Introduced
-
- In Committee Assembly
- In Committee Senate
-
- On Floor Calendar Assembly
- On Floor Calendar Senate
-
- Passed Assembly
- Passed Senate
- Delivered to Governor
- Signed By Governor
Actions
Bill Amendments
2009-A9936 - Details
2009-A9936 - Sponsor Memo
BILL NUMBER:A9936 TITLE OF BILL: An act to amend the public health law, in relation to parental notification of newborn DNA storage PURPOSE OR GENERAL IDEA OF BILL: The purpose of this legislation is to require parental consent for the retention of genetic material collected from infants taken following birth. SUMMARY OF SPECIFIC PROVISIONS: The bill will amend the public health law to add section § 2500-k to the public health law, stating that notwithstanding any other provision of the law to the contrary, no test, DNA, blood spot or other genetic information shall be retained for any period of time without written notification to the infant's parents. JUSTIFICATION: Medical data is routinely collected from infants by hospitals without parental awareness or consent. While screening for genetic diseases at birth is a worthy and beneficial action, the storage of this information linked to the subject's identity is an unnecessarily invasive policy. New York currently mandates the storage of this genetic information for 27 years, an unreasonably long time for data to be held without consent. PRIOR LEGISLATIVE HISTORY: None FISCAL IMPLICATIONS: None.
2009-A9936 - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 9936 I N A S S E M B L Y February 12, 2010 ___________ Introduced by M. of A. ROSENTHAL -- read once and referred to the Committee on Health AN ACT to amend the public health law, in relation to parental notifica- tion of newborn DNA storage THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. The public health law is amended by adding a new section 2500-k to read as follows: S 2500-K. PARENTAL CONSENT FOR NEWBORN DNA STORAGE. NOTWITHSTANDING ANY OTHER PROVISION OF LAW, RULE OR REGULATION TO THE CONTRARY, NO TEST, DNA, BLOOD SPOT OR OTHER GENETIC INFORMATION SHALL BE SENT TO ANY LAB FOR GENETIC SCREENING OR RETAINED WITH THE INFANT'S IDENTIFYING INFORMA- TION FOR ANY PERIOD OF TIME WITHOUT WRITTEN CONSENT FROM THE INFANT'S PARENTS. S 2. This act shall take effect immediately. EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD15827-02-0
co-Sponsors
Mike Spano
Alan Maisel
Joan Millman
Adam Clayton Powell IV
multi-Sponsors
William Boyland
Joan Christensen
Marcos Crespo
Joseph Errigo
2009-A9936A (ACTIVE) - Details
2009-A9936A (ACTIVE) - Sponsor Memo
BILL NUMBER:A9936A TITLE OF BILL: An act to amend the public health law, in relation to parental notification of newborn DNA storage PURPOSE OR GENERAL IDEA OF BILL: The purpose of this legislation is to require parental consent for the retention of genetic material collected from infants taken following birth. SUMMARY OF SPECIFIC PROVISIONS: : The bill will amend the public health law to add section § 2500-k, stating that notwithstanding any other provision of the law to the contrary, no test, DNA, blood spot or other genetic information shall be sent to any lab or retained with the infant's identifying information without written consent from the infant's parents. JUSTIFICATION: Medical data is routinely collected from infants by hospitals without parental awareness or consent. While screening for genetic diseases at birth is a worthy and beneficial action, the storage of this information linked to the subject's identity is an unnecessarily invasive policy. New York currently mandates the storage of this genetic information for 27 years, an unreasonably long time for data to be held without consent. PRIOR LEGISLATIVE HISTORY: None
2009-A9936A (ACTIVE) - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 9936--A I N A S S E M B L Y February 12, 2010 ___________ Introduced by M. of A. ROSENTHAL -- read once and referred to the Committee on Health -- committee discharged, bill amended, ordered reprinted as amended and recommitted to said committee AN ACT to amend the public health law, in relation to parental notifica- tion of newborn DNA storage THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. The public health law is amended by adding a new section 2500-k to read as follows: S 2500-K. PARENTAL CONSENT FOR NEWBORN DNA STORAGE. NOTWITHSTANDING ANY OTHER PROVISION OF LAW, RULE OR REGULATION TO THE CONTRARY, NO TEST, DNA, BLOOD SPOT OR OTHER GENETIC INFORMATION SHALL BE RETAINED WITH THE INFANT'S IDENTIFYING INFORMATION FOR ANY PERIOD OF TIME OR DISTRIBUTED/SENT TO ANY LAB FOR ANY PURPOSE OTHER THAN WHAT IS NECESSARY FOR THE EVALUATION OR INTERPRETATION OF THE TESTING FOR THE REQUIRED DISEASES AND CONDITIONS WITHOUT THE WRITTEN CONSENT FROM THE INFANT'S PARENTS. S 2. This act shall take effect immediately. EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD15827-03-0
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