BILL NUMBER:  S3485

 TITLE OF BILL :

An act to amend the mental hygiene law, in relation to authorizing the
release of certain records of deceased residents of OMRDD operated or
certified facilities to family members upon written request


 PURPOSE OF THE BILL :

This bill would amend the Mental Hygiene Law (MHL) to authorize the
release of certain records of deceased residents of facilities
certified or operated by the Office of Mental Retardation and
Developmental Disabilities (OMRDD).

 SUMMARY OF PROVISIONS :

Section 1 of the bill would add a new subdivision (g) to MHL § 13.09
and reletter subdivision (f) to subdivision (h) to authorize the
Commissioner of OMRDD to promulgate regulations that would provide for
the release of certain records of deceased residents of OMRDD
certified or operated facilities upon written request to a family
member other than a qualified person as defined by MHL § 33.16(a)(6)
on a case-by-case basis.

              

Section 2 of the bill would amend MHL § 33.13(c) by adding a new
paragraph (15) to authorize the release of records of a deceased
resident upon a written request by the physician of a family member
when there is a demonstrable medical need for such information as it
is relevant to the family member's own health care.

Section 3 of the bill provides that section 1 of the bill would take
effect 180 days after enactment and section 2 of the bill would take
effect immediately upon enactment.

 EXISTING LAW :

The MHL does not allow for release of information about a deceased
individual to a family member who is not a "qualified person" pursuant
to MHL §§ 33.13, 33.16. Only certain qualified family members, who are
parents, a spouse or an adult child of the individual, may obtain
information.

In accordance with a national movement and laws in other states to
give dignity to institutionalized persons with developmental
disabilities who, upon their death, were usually assigned only a
number in a state facility cemetery or otherwise had an unmarked
grave, Chapter 520 of the Laws of 2008 was enacted to provide for
release of very limited information about a deceased resident of an
OMRDD facility (i.e. names and birth/death dates) for the sole purpose
of inscribing a cemetery marker.

 PRIOR LEGISLATIVE HISTORY :
This is a new proposal.

 STATEMENT IN SUPPORT :
Currently, the MHL allows for the release of records of deceased
residents of OMRDD facilities only to those "qualified" family members
specified in MHL § 13.09, namely, a parent, a spouse, or an adult
child of such individual. This bill would authorize the commissioner
of OMRDD to develop regulations in order to provide certain
information to other family members on a case-by-case basis.  Family
members may learn of the existence of their relative only after the
relative's death, and may have no ability to ascertain whether their
relative even existed. The types of information to be released could
include the person's name, dates of birth, death and admission,
discharge/release, cause of death, diagnosis, treatment, services
provided, employment and family history. Where the commissioner has
determined that the release of information is appropriate pursuant to
the standards set forth in regulation, this bill would allow for
release unless the individual or a qualified family member had
objected during his or her lifetime and such objection was documented
in the individual's services plan.

The bill would also amend MHL § 33.13 hy adding a new paragraph 15 to
provide for the release of records to a physician of a family member,
who is not a qualified person, when the family member has a
demonstrable medical need for such information. This provision would
bring State law into compliance with the federal Health Insurance
portability and Accountability Act (HIPAA) which allows for release of
clinical information to a family member for this specific purpose.

 BUDGET IMPLICATIONS :

This proposal has no fiscal implications.

 EFFECTIVE DATE
Section 1 of the bill would take effect 180 days after enactment and
Section 2 would take effect immediately.