Assembly Actions -
Lowercase Senate Actions - UPPERCASE |
|
---|---|
Dec 06, 2013 |
enacting clause stricken |
Apr 23, 2013 |
reported referred to ways and means |
Jan 09, 2013 |
referred to health |
Assembly Bill A551
2013-2014 Legislative Session
Sponsored By
GIBSON
Archive: Last Bill Status - Stricken
- Introduced
-
- In Committee Assembly
- In Committee Senate
-
- On Floor Calendar Assembly
- On Floor Calendar Senate
-
- Passed Assembly
- Passed Senate
- Delivered to Governor
- Signed By Governor
Actions
co-Sponsors
Ellen C. Jaffee
Marcos Crespo
Sam Roberts
multi-Sponsors
James F. Brennan
Jeffrey Dinowitz
Margaret Markey
Joan Millman
2013-A551 (ACTIVE) - Details
2013-A551 (ACTIVE) - Summary
Creates an education and outreach program for the autoimmune disease known as lupus; provides for an advisory council consisting of representatives of people with lupus and their families and health care providers who specialize in treating lupus; appropriates funds for the lupus education and outreach program.
2013-A551 (ACTIVE) - Bill Text download pdf
S T A T E O F N E W Y O R K ________________________________________________________________________ 551 2013-2014 Regular Sessions I N A S S E M B L Y (PREFILED) January 9, 2013 ___________ Introduced by M. of A. GIBSON, JAFFEE, CRESPO -- Multi-Sponsored by -- M. of A. BRENNAN, MARKEY, MILLMAN, PERRY, SCARBOROUGH, THIELE -- read once and referred to the Committee on Health AN ACT to amend the public health law, in relation to the lupus educa- tion and outreach program; and making an appropriation therefor THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: Section 1. Legislative intent. The legislature hereby finds the following: (a) Lupus is a serious, complex, debilitating autoimmune disease that can cause inflammation and tissue damage to virtually any organ system in the body, including the skin, joints, other connective tissue, blood and blood vessels, heart, lungs, kidney, and brain. (b) Lupus research estimates that approximately one and a half to two million Americans live with some form of lupus; lupus affects women nine times more often than men and eighty percent of newly diagnosed cases of lupus develop among women of childbearing age. (c) Lupus disproportionately affects women of color -- it is two to three times more common among African-Americans, Hispanics, Asians and Native Americans and is generally more prevalent in minority populations -- a health disparity that remains unexplained. According to the Centers for Disease Control and Prevention the rate of lupus mortality has increased since the late 1970s and is higher among older African-Ameri- can women. (d) No new drugs have been approved by the U.S. Food and Drug Adminis- tration specifically for lupus in nearly forty years and while current treatments for the disease can be effective, they can lead to damaging side effects. (e) The pain and fatigue associated with lupus can threaten people's ability to live independently, make it difficult to maintain employment EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted.
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