NY State Senate Bill 2017-S7185

Archive: Last Bill Status - In Senate Committee Health Committee

Introduced
- In Committee Assembly
- In Committee Senate
- On Floor Calendar Assembly
- On Floor Calendar Senate
- Passed Assembly
- Passed Senate
Delivered to Governor
Signed By Governor

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	Assembly Actions - Lowercase Senate Actions - UPPERCASE
Jan 03, 2018	referred to health

2017-S7185 (ACTIVE) - Details

Current Committee:: Senate Health
Law Section:: Public Health Law
Laws Affected:: Add Art 18 §§1801 - 1802, Pub Health L
Versions Introduced in Other Legislative Sessions:: 2019-2020: S1304
2021-2022: S2145

2017-S7185 (ACTIVE) - Summary

Provides that the department of health shall conduct a program of epidemiological assessments of the incidence of Parkinson's disease in the state.

2017-S7185 (ACTIVE) - Sponsor Memo

                                
 
BILL NUMBER: S7185

SPONSOR: SERINO
 
TITLE OF BILL:

An act to amend the public health law, in relation to developing a
Parkinson's disease assessment program in the state

 
PURPOSE:

Relates to the creation of a disease assessment program

 
SUMMARY OF PROVISIONS:

Section 1: Amends the public health law to add a new article 18 that
establishes a Parkinson's Disease Assessment Program. The Program will
conduct epidemiological assessments of Parkinson's disease in the state
including cases associated with suspected chemical agents encountered by
the general public and specific occupations.  Physicians and those
employed in specified healthcare facilities will be required to report
cases of Parkinson's disease diagnosis and the Commissioner will be

required to analyze incidence data and issue an annual report. The
registry will have privacy and confidentiality measures to protect
patient information.

Section 2: Establishes the effective date.

 
JUSTIFICATION:

It has been estimated that approximately one million Americans live with
Parkinson's disease, which is more than the number of those persons
diagnosed with multiple sclerosis, muscular dystrophy and Lou Gehrig's
disease combined. Parkinson's disease is the second most common age
related neurodegenerative disorder behind Alzheimer's disease. It is
characterized by tremors, stiffness, loss of balance, slowness of move-
ment, among other symptoms. In addition to these medical symptoms, those
patients diagnosed with Parkinson's disease show increased risk of
depression, social isolation, and financial impacts due to the costs of
medication and healthcare. Despite the debilitating impacts of this
condition, neither the causes nor trends of diagnoses of Parkinson's
disease are well established. As such, there is not much consensus on
whether it impacts certain populations, occupations, or geographic
areas.

While recent research has suggested that there is a correlation between
environmental factors (i.e. pesticides) and Parkinson's disease, there
remains an absence of comprehensive data. Despite this lack of informa-
tion there have been suggestions that there are geographic impacts.
Studies have shown that Parkinson's disease prevalence is 2-10 times
greater in the Northeast as compared to western and southern US states.
In fact, a study by Washington University School of Medicine, Western
New York State has one of the highest rates of Parkinson's disease diag-
nosis nationwide. To that end, recent studies have also suggested that
exposure to toxic fumes - particularly those inhaled by police, fire-
fighters, and other first responders - can increase the risk of
Parkinson's disease.

Given the prevalence of this condition and the significant impacts to
patients, caregivers, and families, it is important that New York public
health authorities begin to examine the incidence rates and statistical
information associated with new cases. This legislation will make
Parkinson's disease one of various reportable conditions in New York
State, and will have New York join Nebraska, Utah, California, and Wash-
ington in establishing a Parkinson's disease registry. The registry will
maintain information surrounding diagnoses of Parkinson's disease so
that medical researchers and public health officials may examine inci-
dence rates, possible risk factors, and trends over time to help develop
educational materials and further research programs to find a cure.

 
LEGISLATIVE HISTORY:

New bill.

 
FISCAL IMPLICATIONS:

To be determined.

 
EFFECTIVE DATE:
This act shall take effect immediately.

2017-S7185 (ACTIVE) - Bill Text download pdf

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   7185
 
                             I N  S E N A T E
 
                                (PREFILED)
 
                              January 3, 2018
                                ___________
 
 Introduced  by  Sen.  SERINO -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the public health  law,  in  relation  to  developing  a
   Parkinson's disease assessment program in the state
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. The public health law is amended by adding a new article 18
 to read as follows:
                                ARTICLE 18
                  PARKINSON'S DISEASE ASSESSMENT PROGRAM
 SECTION 1801. DEFINITIONS.
         1802. PARKINSON'S DISEASE REGISTRY.
   § 1801. DEFINITIONS. FOR THE PURPOSES OF THIS ARTICLE: 1. "PARKINSON'S
 DISEASE" SHALL  MEAN  A  CHRONIC  AND  PROGRESSIVE  NEUROLOGIC  DISORDER
 RESULTING FROM DEFICIENCY OF THE NEUROTRANSMITTER DOPAMINE AS THE CONSE-
 QUENCE OF DEGENERATIVE, VASCULAR, OR INFLAMMATORY CHANGES IN THE AREA OF
 THE BRAIN CALLED THE BASAL GANGLIA. SUCH DISORDER SHALL BE CHARACTERIZED
 BY  TREMOR  AT  REST,  SLOW  MOVEMENTS, AND RIGIDITY OF MOVEMENT, DROOPY
 POSTURE, MUSCLE WEAKNESS, AND UNSTEADY OR SHUFFLING GAIT; AND
   2. "FACILITY" SHALL MEAN ANY GOVERNMENTAL OR PRIVATE  AGENCY,  DEPART-
 MENT,  INSTITUTION, CLINIC, LABORATORY, HOSPITAL, NURSING CARE FACILITY,
 HEALTH MAINTENANCE ORGANIZATION, ASSOCIATION  OR  OTHER  SIMILAR  ENTITY
 THAT PROVIDES MEDICAL CARE.
   § 1802. PARKINSON'S  DISEASE REGISTRY. 1. THE DEPARTMENT SHALL CONDUCT
 A  PROGRAM  OF    EPIDEMIOLOGICAL  ASSESSMENTS  OF  THE   INCIDENCE   OF
 PARKINSON'S DISEASE IN THE STATE. SUCH PROGRAM SHALL INCLUDE, BUT NOT BE
 LIMITED  TO,  THE  MONITORING  OF  PARKINSON'S  DISEASE  ASSOCIATED WITH
 SUSPECTED CHEMICAL AGENTS ENCOUNTERED BY  THE  GENERAL  PUBLIC  BOTH  IN
 SPECIFIC OCCUPATIONS AND IN THE ENVIRONMENT GENERALLY.
   2.  AN  ATTENDING  PHYSICIAN OR A PERSON REPRESENTING OR EMPLOYED BY A
 FACILITY AS DEFINED BY THE COMMISSIONER SHALL REPORT  THE  EXISTENCE  OF
 PARKINSON'S  DISEASE  TO  THE  DEPARTMENT  WHEN  SUCH PHYSICIAN OR OTHER
 PERSON DIAGNOSES THE PRESENCE OF THAT ILLNESS OR A PATIENT IS PRESCRIBED

  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD13995-01-7

 S. 7185                             2
 
 MEDICATION THAT IS USED TO TREAT PARKINSON'S DISEASE OR  RELATED  NEURO-
 LOGICAL CONDITIONS.
   3.  (A)  THE  COMMISSIONER  SHALL ANALYZE AVAILABLE INCIDENCE DATA AND
 PREPARE REPORTS AS NECESSARY TO IDENTIFY PARKINSON'S DISEASE HAZARDS TO:
   (I) PUBLIC HEALTH;
   (II) SPECIFIC OCCUPATIONS; AND
   (III) GEOGRAPHIC AREAS AND THEIR INTERVENTIONS AND REMEDIES.
   (B) THE COMMISSIONER SHALL ISSUE AN ANNUAL REPORT THAT SHALL BE DESIG-
 NATED AS A PARKINSON'S DISEASE REPORT AND SHALL, AT A  MINIMUM,  CONTAIN
 INFORMATION WHICH THE COMMISSIONER ESTABLISHES AS NECESSARY TO IDENTIFY,
 LOCATE AND INVESTIGATE THE:
   (I) OCCURRENCE;
   (II) FREQUENCY;
   (III) INCIDENCE; AND
   (IV) CONCENTRATIONS IN PARTICULAR OCCUPATIONS; CAUSE, EFFECT AND PROG-
 NOSIS  OF PARKINSON'S DISEASE, AND OTHER RELEVANT DATA AND FINDINGS WITH
 RESPECT THERETO.
   (C) PARKINSON'S DISEASE REPORTS AND DATA SHALL BE  MAINTAINED  BY  THE
 DEPARTMENT IN A MANNER SUITABLE FOR RESEARCH PURPOSES, AND SHALL BE MADE
 AVAILABLE TO PERSONS SET FORTH IN THIS ARTICLE.
   4.  NOTWITHSTANDING  ANY  OTHER  PROVISIONS  OF  LAW,  ALL INFORMATION
 COLLECTED PURSUANT TO THIS ARTICLE SHALL BE CONFIDENTIAL INSOFAR AS  THE
 IDENTITY OF THE INDIVIDUAL PATIENT IS CONCERNED AND SHALL BE USED SOLELY
 FOR THE PURPOSES AS PROVIDED IN THIS ARTICLE. ACCESS TO SUCH INFORMATION
 SHALL  BE  LIMITED  TO  THE  AUTHORIZED  EMPLOYEES OF THE DEPARTMENT AND
 PERSONS WITH A VALID SCIENTIFIC INTEREST AND QUALIFICATIONS, AS  DEFINED
 BY  THE COMMISSIONER, WHO ARE ENGAGED IN DEMOGRAPHIC, EPIDEMIOLIGICAL OR
 OTHER SIMILAR STUDIES RELATED TO HEALTH, AND WHO AGREE, IN  WRITING,  TO
 MAINTAIN CONFIDENTIALITY AS ESTABLISHED BY THE COMMISSIONER.
   5. (A) THE DEPARTMENT SHALL MAINTAIN AN ACCURATE RECORD OF ALL PERSONS
 WHO  ARE  GIVEN  ACCESS TO THE INFORMATION CONTAINED IN SUCH PARKINSON'S
 DISEASE REPORTS AS ESTABLISHED IN SUBDIVISION  THREE  OF  THIS  SECTION.
 SUCH RECORD SHALL INCLUDE:
   (I) THE NAME OF THE PERSON AUTHORIZING ACCESS;
   (II)  THE NAME, TITLE, AND ORGANIZATIONAL AFFILIATION OF PERSONS GIVEN
 ACCESS; AND
   (III) DATES OF ACCESS AND THE SPECIFIC PURPOSE FOR  WHICH  INFORMATION
 IS TO BE USED.
   (B)  THE  RECORD  OF  ACCESS SHALL BE OPEN TO PUBLIC INSPECTION DURING
 NORMAL OPERATING HOURS OF THE DEPARTMENT.
   6. PERSONS WITH A VALID SCIENTIFIC INTEREST WHO ARE ENGAGED  IN  DEMO-
 GRAPHIC, EPIDEMIOLOGICAL, OR OTHER SIMILAR STUDIES RELATED TO HEALTH WHO
 MEET  QUALIFICATIONS  AS DETERMINED BY THE DEPARTMENT, AND WHO AGREE, IN
 WRITING, TO MAINTAIN CONFIDENTIALITY, MAY BE AUTHORIZED ACCESS TO CONFI-
 DENTIAL INFORMATION. ANY PERSON WHO, IN VIOLATION OF A WRITTEN AGREEMENT
 TO MAINTAIN CONFIDENTIALITY, DISCLOSES ANY INFORMATION PROVIDED PURSUANT
 TO THIS SECTION, OR WHO  USES  INFORMATION  PROVIDED  PURSUANT  TO  THIS
 SECTION  IN A MANNER OTHER THAN THAT PRESCRIBED BY THE COMMISSIONER, MAY
 BE DENIED FURTHER ACCESS TO ANY CONFIDENTIAL INFORMATION  MAINTAINED  BY
 THE DEPARTMENT.
   7.  NOTWITHSTANDING  ANY  OTHER  PROVISIONS OF LAW, THE DEPARTMENT MAY
 AUTHORIZE A NEW YORK MEDICAL RESEARCH INSTITUTION TO OVERSEE  AND  MAIN-
 TAIN  THE  PARKINSON'S DISEASE REGISTRY UPON A SHOWING OF THE ABILITY TO
 COLLECT AND ANALYZE INFORMATION IN A  TIMELY  MANNER  AND  MAINTAIN  THE
 CONFIDENTIALITY  AND  PRIVACY OF ALL RECORDS HOUSED THEREIN. THE COMMIS-
 SIONER SHALL  REMAIN  RESPONSIBLE  FOR  ENSURING  REPORTING  PROCEDURES,

 S. 7185                             3
 
 PRIVACY  COMPLIANCE, AND APPROVAL FOR ACCESS TO THE RECORDS ARE SUITABLE
 AND COMPLIANT WITH ALL RULES AND REGULATIONS.
   8.  THE COMMISSIONER MAY ENTER INTO CONTRACTS AS ARE NECESSARY FOR THE
 CONDUCT OF SUCH PROGRAM AND MAY ACCEPT, ON BEHALF OF THE  STATE,  GRANTS
 OF PUBLIC OR PRIVATE FUNDS FOR SUCH PROGRAM.
   9.  THE  COMMISSIONER  MAY COORDINATE THE PARKINSON'S DISEASE REGISTRY
 WITH ALL OTHER PUBLIC HEALTH REGISTRIES WHERE PRACTICABLE, INCLUDING BUT
 NOT LIMITED TO ARTICLE TWENTY AND SECTION TWO THOUSAND FOUR HUNDRED  ONE
 OF  THIS  CHAPTER, OR ANY OTHER EPIDEMIOLOGICAL ASSESSMENTS CONDUCTED BY
 THE DEPARTMENT TO DETERMINE PUBLIC HEALTH  INCIDENCE  RATES  AND  CORRE-
 LATIONS  WITH  ENVIRONMENTAL FACTORS, GEOGRAPHIC LOCATIONS, OR ANY OTHER
 STATISTICALLY RELEVANT INFORMATION.
   10. THE REGISTRY SHALL PROVIDE INFORMATION TO SUPPLEMENT  THE  COORDI-
 NATING  COUNCIL AS PROVIDED BY SECTION TWO THOUSAND FOUR-A OF THIS CHAP-
 TER. UPON THE RECOMMENDATION OF THE COORDINATING COUNCIL AND A  MAJORITY
 VOTE,  A  DESIGNEE  SHALL BE CONSULTED TO ATTEND ALL COUNCIL MEETINGS TO
 PROVIDE INFORMATION AND ANALYSIS OF  INFORMATION  CONTAINED  WITHIN  THE
 PARKINSON'S DISEASE REGISTRY AND REPORTS.
   11.  THE  DEPARTMENT, WHERE PRACTICABLE, SHALL MAKE AVAILABLE INFORMA-
 TION REGARDING RESEARCH OPPORTUNITIES, CLINICAL TRIALS, OR PUBLIC AWARE-
 NESS CAMPAIGNS ON ITS WEBSITE RELATED TO PARKINSON'S  DISEASE  RESEARCH,
 IDENTIFICATION, AND TREATMENT.
   12.  THE COMMISSIONER SHALL PROMULGATE RULES AND REGULATIONS TO IMPLE-
 MENT THE PROVISIONS OF THIS ARTICLE.
   § 2. This act shall take effect immediately.

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Senate Bill S7185

Sponsored By

Archive: Last Bill Status - In Senate Committee Health Committee

2017-S7185 (ACTIVE) - Details

2017-S7185 (ACTIVE) - Summary

2017-S7185 (ACTIVE) - Sponsor Memo

2017-S7185 (ACTIVE) - Bill Text download pdf

Comments

Senate Bill S7185

Share this bill

Sponsored By

Susan Serino

Archive: Last Bill Status - In Senate Committee Health Committee

2017-S7185 (ACTIVE) - Details

2017-S7185 (ACTIVE) - Summary

2017-S7185 (ACTIVE) - Sponsor Memo

2017-S7185 (ACTIVE) - Bill Text download pdf

Comments