S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                 10583--A
 
                           I N  A S S E M B L Y
 
                               June 4, 2020
                                ___________
 
 Introduced  by  COMMITTEE  ON RULES -- (at request of M. of A. L. Rosen-
   thal) -- read once and referred to the Committee on Health --  commit-
   tee  discharged, bill amended, ordered reprinted as amended and recom-
   mitted to said committee
 
 AN ACT in relation to the collection of emergency health  data  and  the
   use of technology to aid during COVID-19; and providing for the repeal
   of such provision upon the expiration thereof
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. For the purposes of this act:
   1. "Covered entity" means any person, including a government entity:
   (a) that collects,  uses,  or  discloses  emergency  health  data,  as
 defined  in this act, electronically or through communication by wire or
 radio; or
   (b) that develops or  operates  a  website,  web  application,  mobile
 application,  mobile  operating system feature, or smart device applica-
 tion for the purpose of tracking, screening, monitoring,  contact  trac-
 ing,  or  mitigation,  or  otherwise  responding  to the COVID-19 public
 health emergency.
   2. "De-identified information" means information that  cannot  reason-
 ably identify, relate to, describe, be capable of being associated with,
 or be linked, directly or indirectly, to a particular individual, house-
 hold, or device.  A covered entity that uses de-identified information:
   (a)  has implemented technical safeguards that prohibit re-identifica-
 tion of the individual to whom the information may pertain;
   (b) has implemented  business  processes  that  specifically  prohibit
 re-identification of the information;
   (c)  has  implemented  business  processes  that  prevent  inadvertent
 release of de-identified information; and
   (d) makes no attempt to re-identify the information.
   3. "Emergency health data" means data linked or reasonably linkable to
 an individual or device, including data inferred or  derived  about  the
 individual, household, or device from other collected data provided such
 data  is  still  linked or reasonably linkable to the individual, house-
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
              

                       [ ] is old law to be omitted.
                                                            LBD16478-05-0

 A. 10583--A                         2
 
 hold, or device, that concerns the  public  COVID-19  health  emergency.
 Such data includes:
   (a)  Information that reveals the past, present, or future physical or
 behavioral health or condition of, or provision  of  healthcare  to,  an
 individual including:
   (i) data derived from the testing or examination;
   (ii)  whether  or not an individual has contracted or been tested for,
 or an estimate of  the  likelihood  that  a  particular  individual  may
 contract, such disease or disorder; and
   (iii) genetic data, biological samples and biometrics; and
   (b)  Other  data  collected in conjunction with other emergency health
 data that can be used to infer health status, health  history,  location
 or associations, including:
   (i) geolocation data, when such term means data capable of determining
 the  past  or  present  precise  physical location of an individual at a
 specific point in time, taking account of population densities,  includ-
 ing  cell-site  location  information,  triangulation  data derived from
 nearby wireless or  radio  frequency  networks  and  global  positioning
 system data;
   (ii)  proximity data, when such term means information that identifies
 or estimates the past or present physical proximity of one individual or
 device to another, including information derived from  Bluetooth,  audio
 signatures, nearby wireless networks, and near field communications;
   (iii) demographic data;
   (iv)  contact information for identifiable individuals or a history of
 the individual's contacts over a period of time, such as an address book
 or call log; and
   (v) any other data collected from a personal device.
   4.  "Individual" means a natural person whom the covered entity  knows
 or has reason to know is located in New York state.
   5.  "Personal  information" means information that identifies, relates
 to, describes, is capable of being associated with, or could  reasonably
 be  linked,  directly  or  indirectly,  with  a particular individual or
 household, or device.
   6. "Process" means  any  operation  or  set  of  operations  that  are
 performed on personal data by either automated or not automated means.
   7.  "Public  health  authority" means the New York state department of
 health, a county health department or the New York  city  department  of
 health and mental hygiene, or a person or entity acting under a grant of
 authority  from  or  contract  with  such  public  agency, including the
 employees or agents of such public agency or its contractors or  persons
 to  entities  to  whom it has granted authority, that is responsible for
 public health matters as part of its official mandate.
   § 2. All covered entities must disclose the following information at a
 fourth grade reading level or below and in the language the entity regu-
 larly uses to communicate with the individual:
   1. The individual's right to opt-in. (a) A covered entity shall obtain
 freely given, specific, informed, and unambiguous opt-in consent from an
 individual to:
   (i) process the individual's personal information or emergency  health
 data; and
   (ii)  make  any changes in the processing of the individual's personal
 information or emergency health data.
   (b) It shall be unlawful for a covered  entity  to  collect,  use,  or
 disclose emergency health data unless:

 A. 10583--A                         3
 
   (i) the individual to whom the data pertains has freely given, specif-
 ic,  informed,  and  unambiguous  consent  to  such  collection, use, or
 disclosure; or
   (ii) such collection, use, or disclosure is necessary and for the sole
 purpose of:
   (A)  protecting  against  malicious, deceptive, fraudulent, or illegal
 activity; or
   (B) detecting, responding to,  or  preventing  security  incidents  or
 threats.
   (c) To the extent that a covered entity must process internet protocol
 addresses,  system  configuration  information, URLs of referring pages,
 locale and language preferences, keystrokes, and other personal informa-
 tion in order to obtain individuals' freely given,  specific,  informed,
 and unambiguous opt-in consent, the entity:
   (i)  shall  only process the personal information necessary to request
 freely given, specific, informed, and unambiguous opt-in consent;
   (ii) shall process the personal information solely to  request  freely
 given, specific, informed, and unambiguous opt-in consent; and
   (iii)  shall immediately delete the personal information if consent is
 withheld or withdrawn.
   2. The individual's right to privacy. (a) All  emergency  health  data
 and  personal information shall be collected at a minimum level of iden-
 tifiability reasonably needed for tracking COVID-19. For a covered enti-
 ty using proximity tracing or exposure notification this includes chang-
 ing temporary anonymous identifiers at least once in a 10 minute period.
   (b) A covered entity shall not  process  personal  information  beyond
 what  is  adequate,  relevant,  and  necessary for the completion of the
 transaction disclosed to, affirmatively consented to, and  requested  by
 the individual.
   (c)  A  covered entity shall not process emergency health data for any
 purpose not authorized under this act, including:
   (i) commercial advertising,  recommendation  for  e-commerce,  or  the
 training  of machine learning algorithms related to, or subsequently for
 use in, commercial advertising and e-commerce;
   (ii)  soliciting,  offering,  selling,  leasing,  licensing,  renting,
 advertising,   marketing,  or  otherwise  commercially  contracting  for
 employment, finance, credit, insurance, housing, or education; or
   (iii) segregating, discriminating in, or otherwise making  unavailable
 the  goods,  services,  facilities,  privileges, advantages, or accommo-
 dations of any place of public accommodation (as such term is defined in
 section 301 of the Americans with Disabilities Act of 1990),  except  as
 authorized  by  a state or federal government entity for a public health
 purpose.
   3. Covered entity privacy policy. (a) A covered entity  shall  provide
 to  the  individual  a  privacy  policy,  prior  to  or  at the point of
 collection of emergency health data:
   (i) detailing how and for what purpose the  covered  entity  collects,
 uses, and discloses emergency health data;
   (ii)  describing the covered entity's data retention and data security
 policies and practices for emergency health data; and
   (iii) describing how an individual  may  exercise  rights  under  this
 section.
   (b)  A covered entity shall create transparency reports, at least once
 every 90 days, that include:
   (i) the number of individuals whose emergency health data the  covered
 entity collected or used;

 A. 10583--A                         4
 
   (ii)  the  categories  of  emergency  health  data collected, used, or
 disclosed;
   (iii)  the  purposes  for which each category of emergency health data
 was collected, used, or disclosed;
   (iv) the number of requests for  individuals  emergency  health  data,
 including information on who the emergency health data was disclosed to;
 and
   (v)  the number of instances where emergency health data was produced,
 in whole or in part, without prior, explicit consents by the individuals
 specified in the request.
   4. Time  limitation  on  retention.  (a)  Emergency  health  data  and
 personal  information  shall  be  deleted  when  the initial purpose for
 collecting or obtaining such data has been satisfied or within 30  days,
 whichever  occurs  first,  except  that  proximity  tracing  or exposure
 notification data which shall be automatically deleted every 14 days.
   (b) This subdivision shall not apply to de-identified information.
   5. Access rights. (a) Emergency health data shall be disclosed only as
 necessary to provide the service requested by an individual.
   (b) A covered entity may  share  aggregate,  de-identified  data  with
 public health authorities.
   (c)  A  covered  entity  shall not disclose emergency health data to a
 third party unless that  third  party  is  contractually  bound  to  the
 covered  entity to meet the same privacy and security obligations as the
 covered entity.
   (d) No covered entity in  possession  of  emergency  health  data  may
 disclose, redisclose, or otherwise disseminate an individual's emergency
 health  data  unless  the  subject  of  the  personal information or the
 subject's legally authorized representative consents in writing  to  the
 disclosure or redisclosure.
   (e)  Individuals  shall  have the right to access the emergency health
 data collected on them and correct any inaccuracies.
   (i) A covered entity must  comply  with  an  individual's  request  to
 correct  emergency  health data not later than 30 days after receiving a
 verifiable request from the individual or, in the case of a  minor,  the
 individual's parent or guardian.
   (ii)  Where  the covered entity has reasonable doubts or cannot verify
 the identity of the individual making a request  under  this  paragraph,
 the  covered entity may request additional information necessary for the
 specific purpose of confirming the identity of the individual.  In  such
 cases, the additional information shall not be processed for any purpose
 other  than verifying the identity of the individual and must be deleted
 immediately upon verification or failure to verify the individual.
   § 3. 1. A covered entity shall implement reasonable measures to ensure
 confidentiality, integrity, and availability of  emergency  health  data
 and personal information.
   2.  A  covered  entity  that collects an individual's emergency health
 data shall implement and maintain  reasonable  security  procedures  and
 practices, including administrative, physical, and technical safeguards,
 appropriate  to the nature of the information and the purposes for which
 that information will be used, to protect that  information  from  unau-
 thorized use, disclosure, access, destruction, or modification.
   3.  A  covered  entity  shall limit access to emergency health data to
 authorized essential personnel whose  use  of  the  data  is  reasonably
 necessary  to  operate the program and record who has accessed emergency
 health data, the date of access, and for what purposes.

 A. 10583--A                         5
 
   § 4. 1. All covered entities  shall  be  subject  to  data  protection
 audits, conducted by a neutral third party auditor, evaluating the tech-
 nology utilized and the development processes for statistical impacts on
 classes  protected under section 296 of article 15 of the executive law,
 as well as for impacts on privacy, and security that includes at a mini-
 mum:
   (a)  a  detailed  description  of  the technology, its design, and its
 purpose;
   (b) an assessment of the relative benefits and costs of the technology
 in light of its purpose, taking into account relevant factors  including
 data minimization practices; the duration for which personal information
 and  the results of the data analysis are stored; what information about
 the technology is available to the public; and  the  recipients  of  the
 results of the technology;
   (c)  an  assessment  of  the risk of harm posed by the technology; the
 risk that the technology may result  in  or  contribute  to  inaccurate,
 unfair, biased, or discriminatory decisions; the risk that the technolo-
 gy  may  dissuade  New  Yorkers from participating in contact tracing or
 obtaining medical testing or  treatment;  and  the  risk  that  personal
 information  or  emergency health data can be accessed by third parties,
 including, but not limited to law enforcement agencies  and  U.S.  Immi-
 gration and Customs Enforcement; and
   (d)  the measures the covered entity will employ to minimize the risks
 described in paragraph (c) of this subdivision, including technological,
 legal and physical safeguards;
   (e) an assessment of whether the covered entity has  followed  through
 on the promises made in its privacy notice regarding collection, access,
 sharing, retention, deletion and sunsetting; and
   (f) if the technology utilizes machine-learning systems, a description
 of the training data information.
   2.  The audits required by this subdivision shall be made fully avail-
 able to the public.
   § 5. 1. Private right of action.
   (a) Any individual alleging a violation of this act  or  a  regulation
 promulgated  under  this  act  may  bring a civil action in any court of
 competent jurisdiction.
   (b) A violation of this act or a regulation promulgated under this act
 with respect to the personal information of an individual constitutes  a
 rebuttable presumption of harm to that individual.
   (c)  In  a civil action in which the plaintiff prevails, the court may
 award:
   (i) liquidated damages of ten  thousand  dollars  or  actual  damages,
 whichever is greater;
   (ii) punitive damages; and
   (iii) any other relief, including an injunction, that the court deter-
 mines is appropriate.
   (d)  In  addition  to  any relief awarded pursuant to paragraph (c) of
 this subdivision, the court shall award reasonable attorney's  fees  and
 costs to any prevailing plaintiff.
   2.  The attorney general may bring an action in the name of the state,
 or as parens patriae on behalf of persons  residing  in  the  state,  to
 enforce the provisions of this act. In an action brought by the attorney
 general,  the  court  may award injunctive relief, including preliminary
 injunctions, to prevent further violations of and compel compliance with
 this act;  civil  penalties  up  to  twenty-five  thousand  dollars  per
 violation  or  up  to  four percent of annual revenue; other appropriate

 A. 10583--A                         6
 
 relief, including restitution, to redress harms  to  individuals  or  to
 mitigate  all  substantial  risk of harm; and any other relief the court
 determines.
   §  6.  This  act shall take effect on the thirtieth day after it shall
 have become a law and shall expire and be  deemed  repealed  January  1,
 2023.

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                 10583--B
 
                           I N  A S S E M B L Y
 
                               June 4, 2020
                                ___________
 
 Introduced  by  COMMITTEE  ON RULES -- (at request of M. of A. L. Rosen-
   thal) -- read once and referred to the Committee on Health --  commit-
   tee  discharged, bill amended, ordered reprinted as amended and recom-
   mitted to said committee -- again reported from  said  committee  with
   amendments,  ordered  reprinted  as  amended  and  recommitted to said
   committee

 AN ACT in relation to  the  collection  of  emergency  health  data  and
   personal information and the use of technology to aid during COVID-19;
   and  providing  for  the  repeal of such provision upon the expiration
   thereof
 
   THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND  ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. For the purposes of this act:
   1.  "Collect"  means  to buy, rent, gather, obtain, receive, or access
 any personal information pertaining  to  an  individual  by  any  means,
 online  or  offline, including but not limited to, receiving information
 from the individual or from a third party,  actively  or  passively,  or
 obtaining information by observing an individual's behavior.
   2. "Covered entity" means any person, including a government entity:
   (a)  that  collects, processes, or discloses emergency health data, as
 defined in this act, electronically or through communication by wire  or
 radio; or
   (b)  that  develops  or  operates  a  website, web application, mobile
 application, mobile operating system feature, or smart  device  applica-
 tion  for  the purpose of tracking, screening, monitoring, contact trac-
 ing, or mitigation, or  otherwise  responding  to  the  COVID-19  public
 health emergency.
   3.  "De-identified  information" means information that cannot reason-
 ably identify, relate to, describe, be capable of being associated with,
 or be linked, directly or indirectly, to a particular individual, house-
 hold, or device.  A covered entity that uses de-identified information:
   (a) has implemented technical safeguards that prohibit  re-identifica-
 tion of the individual to whom the information may pertain;
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
              

                                                            LBD16478-13-0

 A. 10583--B                         2
 
   (b)  has  implemented  business  processes  that specifically prohibit
 re-identification of the information;
   (c)  has  implemented  business  processes  that  prevent  inadvertent
 release of de-identified information; and
   (d) makes no attempt to re-identify the information.
   4. "Disclose" means any action, set of actions, or omission in which a
 covered entity makes personal information available to  another  person,
 intentionally or unintentionally, including but not limited to, sharing,
 publishing,  releasing,  transferring,  disseminating, making available,
 selling, leasing, providing access to, failing to restrict access to, or
 otherwise communicating orally, in writing, electronically,  or  by  any
 other means.
   5. "Emergency health data" means data linked or reasonably linkable to
 an  individual, household, or device, including data inferred or derived
 about the individual, household, or device  from  other  collected  data
 provided  such  data is still linked or reasonably linkable to the indi-
 vidual, household, or device, that concerns the public  COVID-19  health
 emergency. Such data includes:
   (a)  Information that reveals the past, present, or future physical or
 behavioral health or condition of, or provision  of  healthcare  to,  an
 individual including:
   (i) data derived from the testing or examination;
   (ii)  whether  or not an individual has contracted or been tested for,
 or an estimate of  the  likelihood  that  a  particular  individual  may
 contract, such disease or disorder; and
   (iii) genetic data, biological samples and biometrics; and
   (b)  Other  data  collected in conjunction with other emergency health
 data that can be used to infer health status, health  history,  location
 or associations, including:
   (i) geolocation data, when such term means data capable of determining
 the  past  or  present  precise  physical location of an individual at a
 specific point in time, taking account of population densities,  includ-
 ing  cell-site  location  information,  triangulation  data derived from
 nearby wireless or  radio  frequency  networks  and  global  positioning
 system data;
   (ii)  proximity data, when such term means information that identifies
 or estimates the past or present physical proximity of one individual or
 device to another, including information derived from  Bluetooth,  audio
 signatures, nearby wireless networks, and near field communications;
   (iii) demographic data;
   (iv)  contact information for identifiable individuals or a history of
 the individual's contacts over a period of time, such as an address book
 or call log; and
   (v) any other data collected from a personal device.
   6. "Individual" means a natural person whom the covered  entity  knows
 or has reason to know is located in New York state.
   7.  "Personal  information" means information that identifies, relates
 to, describes, is capable of being associated with, or could  reasonably
 be  linked,  directly  or  indirectly,  with  a particular individual or
 household, or device.
   8. "Process" means  any  operation  or  set  of  operations  that  are
 performed on personal data by either automated or not automated means.
   9.  "Public  health  authority" means the New York state department of
 health, a county health department or the New York  city  department  of
 health and mental hygiene, or a person or entity acting under a grant of
 authority  from  or  contract  with  such  public  agency, including the

 A. 10583--B                         3
 
 employees or agents of such public agency or its contractors or  persons
 to  entities  to  whom it has granted authority, that is responsible for
 public health matters as part of its official mandate.
   § 2. Individual rights.
   1. The individual's right to opt-in. (a) A covered entity shall obtain
 freely given, specific, informed, and unambiguous opt-in consent from an
 individual to:
   (i)  process the individual's personal information or emergency health
 data; and
   (ii) make any changes in the processing of the  individual's  personal
 information or emergency health data.
   (b)  It shall be unlawful for a covered entity to collect, process, or
 disclose emergency health data or personal information unless:
   (i) the individual to whom the data pertains has freely given, specif-
 ic, informed, and unambiguous consent to such collection, processing, or
 disclosure; or
   (ii) such collection, processing, or disclosure is necessary  and  for
 the sole purpose of:
   (A)  protecting  against  malicious, deceptive, fraudulent, or illegal
 activity; or
   (B) detecting, responding to,  or  preventing  security  incidents  or
 threats.
   (c) To the extent that a covered entity must process internet protocol
 addresses,  system  configuration  information, URLs of referring pages,
 locale and language preferences, keystrokes, and other personal informa-
 tion in order to obtain individuals' freely given,  specific,  informed,
 and unambiguous opt-in consent, the entity:
   (i)  shall  only process the personal information necessary to request
 freely given, specific, informed, and unambiguous opt-in consent;
   (ii) shall process the personal information solely to  request  freely
 given, specific, informed, and unambiguous opt-in consent; and
   (iii)  shall immediately delete the personal information if consent is
 withheld or withdrawn.
   2. The individual's right to privacy. (a) All  emergency  health  data
 and  personal information shall be collected at a minimum level of iden-
 tifiability reasonably needed for  the  completion  of  the  transaction
 disclosed  to, affirmatively consented to, and requested by the individ-
 ual. For a covered entity using proximity tracing or exposure  notifica-
 tion  this  includes  changing  temporary anonymous identifiers at least
 once in a 20 minute period.
   (b) A covered entity shall not process personal information  or  emer-
 gency  health  data beyond what is adequate, relevant, and necessary for
 the completion of the transaction disclosed to, affirmatively  consented
 to, and requested by the individual.
   (c)  A  covered  entity  shall  not  process  emergency health data or
 personal information for any purpose  not  authorized  under  this  act,
 including:
   (i)  commercial  advertising,  recommendation  for  e-commerce, or the
 training of machine learning algorithms related to, or subsequently  for
 use in, commercial advertising and e-commerce;
   (ii)  soliciting,  offering,  selling,  leasing,  licensing,  renting,
 advertising,  marketing,  or  otherwise  commercially  contracting   for
 employment, finance, credit, insurance, housing, or education; or
   (iii)  segregating, discriminating in, or otherwise making unavailable
 the goods, services, facilities,  privileges,  advantages,  or  accommo-
 dations of any place of public accommodation (as such term is defined in

 A. 10583--B                         4
 
 section  301  of the Americans with Disabilities Act of 1990), except as
 authorized by a state or federal government entity for a  public  health
 purpose;  provided  that  a  covered  entity shall not process emergency
 health  data or personal information to make categorical decisions about
 the allocation of care based on disability.
   3. Covered entity privacy policy. (a) A covered entity  shall  provide
 to  the  individual a privacy policy, at a fourth grade reading level or
 below and in the language the entity regularly uses to communicate  with
 the  individual,  prior  to  or  at the point of collection of emergency
 health data or personal information:
   (i) detailing how and for what purpose the  covered  entity  collects,
 processes, and discloses emergency health data and personal information;
   (ii)  describing the covered entity's data retention and data security
 policies and practices for emergency health data and  personal  informa-
 tion; and
   (iii)  describing  how  an  individual  may exercise rights under this
 section.
   (b) A covered entity shall create transparency reports, at least  once
 every 90 days, that include:
   (i)  the number of individuals whose emergency health data or personal
 information the covered entity collected or processed;
   (ii) the categories of emergency health data and personal  information
 collected, processed, or disclosed;
   (iii) the purposes for which each category of emergency health data or
 personal information was collected, processed, or disclosed;
   (iv)  the number of requests for individuals' emergency health data or
 personal information, including information on who the emergency  health
 data or personal information was disclosed to; and
   (v)  the  number  of instances where emergency health data or personal
 information was produced, in whole or in part, without  prior,  explicit
 consents by the individuals specified in the request.
   (c) The covered entity shall make each transparency report persistent-
 ly available and readily accessible on such entity's website.
   4.  Time  limitation  on  retention.  (a)  Emergency  health  data and
 personal information shall be  deleted  when  the  initial  purpose  for
 collecting  or obtaining such data has been satisfied or within 30 days,
 whichever occurs  first,  except  that  proximity  tracing  or  exposure
 notification data which shall be automatically deleted every 14 days.
   (b) This subdivision shall not apply to de-identified information.
   5.  Access  rights. (a) Emergency health data and personal information
 shall be disclosed only as necessary to provide the service requested by
 an individual.
   (b) A covered entity may  share  aggregate,  de-identified  data  with
 public health authorities.
   (c)  A  covered  entity  shall  not  disclose emergency health data or
 personal information to  a  third  party  unless  that  third  party  is
 contractually  bound  to the covered entity to meet the same privacy and
 security obligations as the covered entity.
   (d) No covered entity  in  possession  of  emergency  health  data  or
 personal  information may disclose, redisclose, or otherwise disseminate
 an individual's emergency health data or personal information unless the
 subject of the emergency health data  or  personal  information  or  the
 subject's  legally  authorized representative consents in writing to the
 disclosure or redisclosure.
   (e) Without consent under subdivision one of this  section,  emergency
 health  data,  personal  information, and any evidence derived therefrom

 A. 10583--B                         5
 
 shall not be subject to or provided in response to any legal process  or
 be  admissible  for any purpose in any judicial or administrative action
 or proceeding.
   (f)  Individuals  shall  have the right to access the emergency health
 data and personal information collected on them and correct any  inaccu-
 racies.
   (i)  A  covered  entity  must  comply  with an individual's request to
 correct emergency health data or personal information not later than  30
 days after receiving a verifiable request from the individual or, in the
 case of a minor, the individual's parent or guardian.
   (ii)  Where  the covered entity has reasonable doubts or cannot verify
 the identity of the individual making a request  under  this  paragraph,
 the  covered entity may request additional information necessary for the
 specific purpose of confirming the identity of the individual.  In  such
 cases, the additional information shall not be processed for any purpose
 other  than verifying the identity of the individual and must be deleted
 immediately upon verification or failure to verify the individual.
   § 3. 1. A covered entity shall implement reasonable measures to ensure
 confidentiality, integrity, and availability of  emergency  health  data
 and personal information.
   2.  A  covered  entity  that collects an individual's emergency health
 data or personal information shall  implement  and  maintain  reasonable
 security  procedures  and practices, including administrative, physical,
 and technical safeguards, appropriate to the nature of  the  information
 and  the  purposes  for  which  that  information  will be processed, to
 protect  that  information  from  unauthorized  processing,  disclosure,
 access, destruction, or modification.
   3.  A  covered  entity shall limit access to emergency health data and
 personal information to authorized essential personnel whose use of  the
 data  is  reasonably necessary to operate the program and record who has
 accessed emergency health data or  personal  information,  the  date  of
 access, and for what purposes.
   §  4.  1.  All  covered  entities  shall  be  subject  to  annual data
 protection audits, conducted by a neutral third party auditor,  evaluat-
 ing  the  technology  utilized and the development processes for statis-
 tical impacts on classes protected under section 296 of  article  15  of
 the  executive law, as well as for impacts on privacy and security, that
 includes at a minimum:
   (a) a detailed description of the  technology,  its  design,  and  its
 purpose;
   (b) an assessment of the relative benefits and costs of the technology
 in  light of its purpose, taking into account relevant factors including
 data minimization practices; the duration for which personal information
 and emergency health data and the  results  of  the  data  analysis  are
 stored;  what  information  about  the  technology  is  available to the
 public; and the recipients of the results of the technology;
   (c) an assessment of the risk of harm posed  by  the  technology;  the
 risk  that  the  technology  may  result in or contribute to inaccurate,
 unfair, biased, or discriminatory decisions; the risk that the technolo-
 gy may dissuade New Yorkers from participating  in  contact  tracing  or
 obtaining  medical  testing  or  treatment;  and  the risk that personal
 information or emergency health data can be accessed by  third  parties,
 including,  but  not  limited to law enforcement agencies and U.S. Immi-
 gration and Customs Enforcement; and

 A. 10583--B                         6
 
   (d) the measures the covered entity will employ to minimize the  risks
 described in paragraph (c) of this subdivision, including technological,
 legal and physical safeguards;
   (e)  an  assessment of whether the covered entity has followed through
 on the promises made in its privacy notice regarding collection, access,
 sharing, retention, deletion and sunsetting; and
   (f) if the technology utilizes machine-learning systems, a description
 of the training data information.
   2. The covered entity shall make the audit persistently available  and
 readily accessible on such entity's website.
   3. The cost of the audit shall be paid by the covered entity.
   § 5. 1. Private right of action.
   (a)  Any  individual  alleging a violation of this act or a regulation
 promulgated under this act may bring a civil  action  in  any  court  of
 competent jurisdiction.
   (b) A violation of this act or a regulation promulgated under this act
 with  respect to the personal information of an individual constitutes a
 rebuttable presumption of harm to that individual.
   (c) In a civil action in which the plaintiff prevails, the  court  may
 award:
   (i)  liquidated  damages  of  ten  thousand dollars or actual damages,
 whichever is greater;
   (ii) punitive damages; and
   (iii) any other relief, including an injunction, that the court deter-
 mines is appropriate.
   (d) In addition to any relief awarded pursuant  to  paragraph  (c)  of
 this  subdivision,  the court shall award reasonable attorney's fees and
 costs to any prevailing plaintiff.
   2. The attorney general may bring an action in the name of the  state,
 or  as  parens  patriae  on  behalf of persons residing in the state, to
 enforce the provisions of this act. In an action brought by the attorney
 general, the court may award injunctive  relief,  including  preliminary
 injunctions, to prevent further violations of and compel compliance with
 this  act;  civil  penalties  up  to  twenty-five  thousand  dollars per
 violation or up to four percent of  annual  revenue;  other  appropriate
 relief,  including  restitution,  to  redress harms to individuals or to
 mitigate all substantial risk of harm; and any other  relief  the  court
 determines.
   §  6.  Severability.  If any clause, sentence, paragraph, subdivision,
 section or part of this act shall be adjudged by any court of  competent
 jurisdiction  to  be invalid, such judgment shall not affect, impair, or
 invalidate the remainder thereof, but shall be confined in its operation
 to the clause, sentence, paragraph, subdivision, section or part thereof
 directly involved in the controversy in which such judgment  shall  have
 been rendered. It is hereby declared to be the intent of the legislature
 that  this  act  would have been enacted even if such invalid provisions
 had not been included herein.
   § 7. This act shall take effect on the thirtieth day  after  it  shall
 have  become  a  law  and shall expire and be deemed repealed January 1,
 2023.

                            
 
                     S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                 10583--C
 
                           I N  A S S E M B L Y
 
                               June 4, 2020
                                ___________
 
 Introduced  by  COMMITTEE  ON RULES -- (at request of M. of A. L. Rosen-
   thal, Dickens, Barron, Simon, Epstein) -- read once  and  referred  to
   the Committee on Health -- committee discharged, bill amended, ordered
   reprinted  as  amended  and  recommitted  to  said  committee -- again
   reported from said committee with  amendments,  ordered  reprinted  as
   amended  and  recommitted  to  said committee -- committee discharged,
   bill amended, ordered reprinted as amended  and  recommitted  to  said
   committee
 
 AN  ACT  in  relation  to  the  collection  of emergency health data and
   personal information and the use of technology to aid during COVID-19;
   and providing for the repeal of such  provision  upon  the  expiration
   thereof
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. For the purposes of this act:
   1. "Collect" means to buy, rent, gather, obtain,  receive,  or  access
 any  personal  information  pertaining  to  an  individual by any means,
 online or offline, including but not limited to,  receiving  information
 from  the  individual  or  from a third party, actively or passively, or
 obtaining information by observing an individual's behavior.
   2. "Covered entity" means any person, including a government entity:
   (a) that collects, processes, or discloses emergency health  data,  as
 defined  in this act, electronically or through communication by wire or
 radio; or
   (b) that develops or  operates  a  website,  web  application,  mobile
 application,  mobile  operating system feature, or smart device applica-
 tion for the purpose of tracking, screening, monitoring,  contact  trac-
 ing,  or  mitigation,  or  otherwise  responding  to the COVID-19 public
 health emergency.
   3. "De-identified information" means information that  cannot  reason-
 ably identify, relate to, describe, be capable of being associated with,
 or be linked, directly or indirectly, to a particular individual, house-
 hold, or device.  A covered entity that uses de-identified information:
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
              

                                                            LBD16478-15-0

 A. 10583--C                         2
 
   (a)  has implemented technical safeguards that prohibit re-identifica-
 tion of the individual to whom the information may pertain;
   (b)  has  implemented  business  processes  that specifically prohibit
 re-identification of the information;
   (c)  has  implemented  business  processes  that  prevent  inadvertent
 release of de-identified information; and
   (d) makes no attempt to re-identify the information.
   4. "Disclose" means any action, set of actions, or omission in which a
 covered  entity  makes personal information available to another person,
 intentionally or unintentionally, including but not limited to, sharing,
 publishing, releasing, transferring,  disseminating,  making  available,
 selling, leasing, providing access to, failing to restrict access to, or
 otherwise  communicating  orally,  in writing, electronically, or by any
 other means.
   5. "Emergency health data" means data linked or reasonably linkable to
 an individual, household, or device, including data inferred or  derived
 about  the  individual,  household,  or device from other collected data
 provided such data is still linked or reasonably linkable to  the  indi-
 vidual,  household,  or device, that concerns the public COVID-19 health
 emergency. Such data includes:
   (a) Information that reveals the past, present, or future physical  or
 behavioral  health  or  condition  of, or provision of healthcare to, an
 individual including:
   (i) data derived from the testing or examination;
   (ii) whether or not an individual has contracted or been  tested  for,
 or  an  estimate  of  the  likelihood  that  a particular individual may
 contract, such disease or disorder; and
   (iii) genetic data, biological samples and biometrics; and
   (b) Other data collected in conjunction with  other  emergency  health
 data  that  can be used to infer health status, health history, location
 or associations, including:
   (i) geolocation data, when such term means data capable of determining
 the past or present precise physical location  of  an  individual  at  a
 specific  point in time, taking account of population densities, includ-
 ing cell-site location  information,  triangulation  data  derived  from
 nearby  wireless  or  radio  frequency  networks  and global positioning
 system data;
   (ii) proximity data, when such term means information that  identifies
 or estimates the past or present physical proximity of one individual or
 device  to  another, including information derived from Bluetooth, audio
 signatures, nearby wireless networks, and near field communications;
   (iii) demographic data;
   (iv) contact information for identifiable individuals or a history  of
 the individual's contacts over a period of time, such as an address book
 or call log; and
   (v) any other data collected from a personal device.
   6.  "Individual"  means a natural person whom the covered entity knows
 or has reason to know is located in New York state.
   7. "Personal information" means information that  identifies,  relates
 to,  describes, is capable of being associated with, or could reasonably
 be linked, directly or  indirectly,  with  a  particular  individual  or
 household, or device.
   8.  "Process"  means  any  operation  or  set  of  operations that are
 performed on personal data by either automated or not automated means.
   9. "Public health authority" means the New York  state  department  of
 health,  a  county  health department or the New York city department of

 A. 10583--C                         3
 
 health and mental hygiene, or a person or entity acting under a grant of
 authority from or  contract  with  such  public  agency,  including  the
 employees  or agents of such public agency or its contractors or persons
 to  entities  to  whom it has granted authority, that is responsible for
 public health matters as part of its official mandate.
   § 2. Individual rights.
   1. The individual's right to opt-in. (a) A covered entity shall obtain
 freely given, specific, informed, and unambiguous opt-in consent from an
 individual to:
   (i) process the individual's personal information or emergency  health
 data; and
   (ii)  make  any changes in the processing of the individual's personal
 information or emergency health data.
   (b) It shall be unlawful for a covered entity to collect, process,  or
 disclose emergency health data or personal information unless:
   (i) the individual to whom the data pertains has freely given, specif-
 ic, informed, and unambiguous consent to such collection, processing, or
 disclosure; or
   (ii)  such  collection, processing, or disclosure is necessary and for
 the sole purpose of:
   (A) protecting against malicious, deceptive,  fraudulent,  or  illegal
 activity; or
   (B)  detecting,  responding  to,  or  preventing security incidents or
 threats.
   (c) To the extent that a covered entity must process internet protocol
 addresses, system configuration information, URLs  of  referring  pages,
 locale and language preferences, keystrokes, and other personal informa-
 tion  in  order to obtain individuals' freely given, specific, informed,
 and unambiguous opt-in consent, the entity:
   (i) shall only process the personal information necessary  to  request
 freely given, specific, informed, and unambiguous opt-in consent;
   (ii)  shall  process the personal information solely to request freely
 given, specific, informed, and unambiguous opt-in consent; and
   (iii) shall immediately delete the personal information if consent  is
 withheld or withdrawn.
   2.  The  individual's  right to privacy. (a) All emergency health data
 and personal information shall be collected at a minimum level of  iden-
 tifiability  reasonably  needed  for  the  completion of the transaction
 disclosed to, affirmatively consented to, and requested by the  individ-
 ual.  For a covered entity using proximity tracing or exposure notifica-
 tion this includes changing temporary  anonymous  identifiers  at  least
 once in a 20 minute period.
   (b)  A  covered entity shall not process personal information or emer-
 gency health data beyond what is adequate, relevant, and  necessary  for
 the  completion of the transaction disclosed to, affirmatively consented
 to, and requested by the individual.
   (c) A covered entity  shall  not  process  emergency  health  data  or
 personal  information  for  any  purpose  not authorized under this act,
 including:
   (i) commercial advertising,  recommendation  for  e-commerce,  or  the
 training  of machine learning algorithms related to, or subsequently for
 use in, commercial advertising and e-commerce;
   (ii)  soliciting,  offering,  selling,  leasing,  licensing,  renting,
 advertising,   marketing,  or  otherwise  commercially  contracting  for
 employment, finance, credit, insurance, housing, or education; or

 A. 10583--C                         4
 
   (iii) segregating, discriminating in, or otherwise making  unavailable
 the  goods,  services,  facilities,  privileges, advantages, or accommo-
 dations of any place of public accommodation (as such term is defined in
 section 301 of the Americans with Disabilities Act of 1990),  except  as
 authorized  by  a state or federal government entity for a public health
 purpose; provided that a covered  entity  shall  not  process  emergency
 health  data or personal information to make categorical decisions about
 the allocation of care based on disability.
   3. Covered entity privacy policy. (a) A covered entity  shall  provide
 to  the  individual a privacy policy, at a fourth grade reading level or
 below and in the language the entity regularly uses to communicate  with
 the  individual,  prior  to  or  at the point of collection of emergency
 health data or personal information:
   (i) detailing how and for what purpose the  covered  entity  collects,
 processes, and discloses emergency health data and personal information;
   (ii)  describing the covered entity's data retention and data security
 policies and practices for emergency health data and  personal  informa-
 tion; and
   (iii)  describing  how  an  individual  may exercise rights under this
 section.
   (b) A covered entity shall create transparency reports, at least  once
 every 90 days, that include:
   (i)  the number of individuals whose emergency health data or personal
 information the covered entity collected or processed;
   (ii) the categories of emergency health data and personal  information
 collected, processed, or disclosed;
   (iii) the purposes for which each category of emergency health data or
 personal information was collected, processed, or disclosed;
   (iv)  the number of requests for individuals' emergency health data or
 personal information, including information on who the emergency  health
 data or personal information was disclosed to; and
   (v)  the  number  of instances where emergency health data or personal
 information was produced, in whole or in part, without  prior,  explicit
 consents by the individuals specified in the request.
   (c) The covered entity shall make each transparency report persistent-
 ly available and readily accessible on such entity's website.
   4.  Time  limitation  on  retention.  (a)  Emergency  health  data and
 personal information shall be  deleted  when  the  initial  purpose  for
 collecting  or obtaining such data has been satisfied or within 30 days,
 whichever occurs  first,  except  that  proximity  tracing  or  exposure
 notification data which shall be automatically deleted every 14 days.
   (b) This subdivision shall not apply to de-identified information.
   5.  Access  rights. (a) Emergency health data and personal information
 shall be disclosed only as necessary to provide the service requested by
 an individual.
   (b) A covered entity may  share  aggregate,  de-identified  data  with
 public health authorities.
   (c)  A  covered  entity  shall  not  disclose emergency health data or
 personal information to  a  third  party  unless  that  third  party  is
 contractually  bound  to the covered entity to meet the same privacy and
 security obligations as the covered entity.
   (d) No covered entity  in  possession  of  emergency  health  data  or
 personal  information may disclose, redisclose, or otherwise disseminate
 an individual's emergency health data or personal information unless the
 subject of the emergency health data  or  personal  information  or  the

 A. 10583--C                         5
 
 subject's  legally  authorized representative consents in writing to the
 disclosure or redisclosure.
   (e)  Without  consent under subdivision one of this section, emergency
 health data, personal information, and any  evidence  derived  therefrom
 shall  not be subject to or provided in response to any legal process or
 be admissible for any purpose in any judicial or  administrative  action
 or proceeding.
   (f)  Individuals  shall  have the right to access the emergency health
 data and personal information collected on them and correct any  inaccu-
 racies.
   (i)  A  covered  entity  must  comply  with an individual's request to
 correct emergency health data or personal information not later than  30
 days after receiving a verifiable request from the individual or, in the
 case of a minor, the individual's parent or guardian.
   (ii)  Where  the covered entity has reasonable doubts or cannot verify
 the identity of the individual making a request  under  this  paragraph,
 the  covered entity may request additional information necessary for the
 specific purpose of confirming the identity of the individual.  In  such
 cases, the additional information shall not be processed for any purpose
 other  than verifying the identity of the individual and must be deleted
 immediately upon verification or failure to verify the individual.
   § 3. 1. A covered entity shall implement reasonable measures to ensure
 confidentiality, integrity, and availability of  emergency  health  data
 and personal information.
   2.  A  covered  entity  that collects an individual's emergency health
 data or personal information shall  implement  and  maintain  reasonable
 security  procedures  and practices, including administrative, physical,
 and technical safeguards, appropriate to the nature of  the  information
 and  the  purposes  for  which  that  information  will be processed, to
 protect  that  information  from  unauthorized  processing,  disclosure,
 access, destruction, or modification.
   3.  A  covered  entity shall limit access to emergency health data and
 personal information to authorized essential personnel whose use of  the
 data  is  reasonably necessary to operate the program and record who has
 accessed emergency health data or  personal  information,  the  date  of
 access, and for what purposes.
   §  4.  1.  All  covered  entities  shall  be  subject  to  annual data
 protection audits, conducted by a neutral third party auditor,  evaluat-
 ing  the  technology  utilized and the development processes for statis-
 tical impacts on classes protected under section 296 of  article  15  of
 the  executive law, as well as for impacts on privacy and security, that
 includes at a minimum:
   (a) a detailed description of the  technology,  its  design,  and  its
 purpose;
   (b) an assessment of the relative benefits and costs of the technology
 in  light of its purpose, taking into account relevant factors including
 data minimization practices; the duration for which personal information
 and emergency health data and the  results  of  the  data  analysis  are
 stored;  what  information  about  the  technology  is  available to the
 public; and the recipients of the results of the technology;
   (c) an assessment of the risk of harm posed  by  the  technology;  the
 risk  that  the  technology  may  result in or contribute to inaccurate,
 unfair, biased, or discriminatory decisions; the risk that the technolo-
 gy may dissuade New Yorkers from participating  in  contact  tracing  or
 obtaining  medical  testing  or  treatment;  and  the risk that personal
 information or emergency health data can be accessed by  third  parties,

 A. 10583--C                         6
 
 including,  but  not  limited to law enforcement agencies and U.S. Immi-
 gration and Customs Enforcement; and
   (d)  the measures the covered entity will employ to minimize the risks
 described in paragraph (c) of this subdivision, including technological,
 legal and physical safeguards;
   (e) an assessment of whether the covered entity has  followed  through
 on the promises made in its privacy notice regarding collection, access,
 sharing, retention, deletion and sunsetting; and
   (f) if the technology utilizes machine-learning systems, a description
 of the training data information.
   2.  The covered entity shall make the audit persistently available and
 readily accessible on such entity's website.
   3. The cost of the audit shall be paid by the covered entity.
   § 5. The attorney general may bring an  action  in  the  name  of  the
 state,  or as parens patriae on behalf of persons residing in the state,
 to enforce the provisions of this act.  In  an  action  brought  by  the
 attorney  general,  the  court  may  award  injunctive relief, including
 preliminary injunctions, to prevent further  violations  of  and  compel
 compliance  with  this  act;  civil penalties up to twenty-five thousand
 dollars per violation or up to four percent  of  annual  revenue;  other
 appropriate  relief, including restitution, to redress harms to individ-
 uals or to mitigate all substantial risk of harm; and any  other  relief
 the court determines.
   §  6.  Severability.  If any clause, sentence, paragraph, subdivision,
 section or part of this act shall be adjudged by any court of  competent
 jurisdiction  to  be invalid, such judgment shall not affect, impair, or
 invalidate the remainder thereof, but shall be confined in its operation
 to the clause, sentence, paragraph, subdivision, section or part thereof
 directly involved in the controversy in which such judgment  shall  have
 been rendered. It is hereby declared to be the intent of the legislature
 that  this  act  would have been enacted even if such invalid provisions
 had not been included herein.
   § 7. This act shall take effect on the thirtieth day  after  it  shall
 have  become  a  law  and shall expire and be deemed repealed January 1,
 2023.