S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   3942
 
                        2019-2020 Regular Sessions
 
                           I N  A S S E M B L Y
 
                             January 31, 2019
                                ___________
 
 Introduced  by M. of A. HYNDMAN, HEVESI -- read once and referred to the
   Committee on Health
 
 AN ACT to amend the public health law, in relation to  prenatal  trisomy
   diagnosis awareness
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. The public health law is amended by adding  a  new  section
 2533 to read as follows:
   §  2533. PRENATAL TRISOMY DIAGNOSIS AWARENESS. 1. FOR PURPOSES OF THIS
 SECTION, THE FOLLOWING TERMS SHALL HAVE THE FOLLOWING MEANINGS:
   (A) "HEALTH CARE  PRACTITIONER"  MEANS  A  MEDICAL  PROFESSIONAL  THAT
 PROVIDES PRENATAL OR POSTNATAL CARE AND ADMINISTERS OR REQUESTS ADMINIS-
 TRATION  OF  A  DIAGNOSTIC  OR  SCREENING  TEST TO A PREGNANT WOMAN THAT
 DETECTS FOR TRISOMY CONDITIONS; AND
   (B) "TRISOMY CONDITIONS" MEANS TRISOMY 13, OTHERWISE  KNOWN  AS  PATAU
 SYNDROME;  TRISOMY  18, OTHERWISE KNOWN AS EDWARDS SYNDROME; AND TRISOMY
 21, OTHERWISE KNOWN AS DOWN SYNDROME.
   2. A HEALTH CARE PRACTITIONER WHO ORDERS PRENATAL TESTS FOR A PREGNANT
 WOMAN TO SCREEN FOR  TRISOMY  CONDITIONS  SHALL  PROVIDE  THE  FOLLOWING
 INFORMATION  TO THE PREGNANT WOMAN IF THE TEST REVEALS A POSITIVE RESULT
 FOR ANY OF THE TRISOMY CONDITIONS:
   (A) UP-TO-DATE AND EVIDENCE-BASED INFORMATION ABOUT THE TRISOMY CONDI-
 TIONS THAT HAS BEEN REVIEWED BY MEDICAL  EXPERTS  AND  NATIONAL  TRISOMY
 ORGANIZATIONS.  THE  INFORMATION  MUST  BE  PROVIDED  IN A WRITTEN OR AN
 ALTERNATIVE FORMAT AND MUST INCLUDE THE FOLLOWING:
   I. EXPECTED PHYSICAL,  DEVELOPMENTAL,  EDUCATIONAL,  AND  PSYCHOSOCIAL
 OUTCOMES;
   II. LIFE EXPECTANCY;
   III. THE CLINICAL COURSE DESCRIPTION;
   IV. EXPECTED INTELLECTUAL AND FUNCTIONAL DEVELOPMENT; AND

  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD04555-01-9
              

 A. 3942                             2
 
   V.  TREATMENT  OPTIONS AVAILABLE FOR THE PARTICULAR SYNDROME FOR WHICH
 THE TEST WAS POSITIVE.
   (B)  CONTACT  INFORMATION  FOR  NONPROFIT  ORGANIZATIONS  THAT PROVIDE
 INFORMATION AND SUPPORT SERVICES FOR TRISOMY CONDITIONS.
   3. (A) THE COMMISSIONER SHALL PROVIDE WRITTEN  INFORMATION  TO  HEALTH
 CARE  PRACTITIONERS  NECESSARY  TO  IMPLEMENT  SUBDIVISION  TWO  OF THIS
 SECTION.
   (B) ADDITIONALLY, THE COMMISSIONER SHALL POST SUCH INFORMATION ON  THE
 DEPARTMENT'S WEBSITE.
   (C)  THE  COMMISSIONER  SHALL  FOLLOW  EXISTING DEPARTMENT PRACTICE TO
 ENSURE THAT THE INFORMATION IS CULTURALLY AND LINGUISTICALLY APPROPRIATE
 FOR ALL RECIPIENTS.
   (D) ANY LOCAL OR NATIONAL  ORGANIZATION  THAT  PROVIDES  EDUCATION  OR
 SERVICES RELATED TO TRISOMY CONDITIONS, MAY REQUEST THAT THE COMMISSION-
 ER  INCLUDE THE ORGANIZATION'S INFORMATIONAL MATERIAL AND CONTACT INFOR-
 MATION ON THE DEPARTMENT'S WEBSITE. ONCE A REQUEST IS MADE, THE  COMMIS-
 SIONER MAY ADD THE INFORMATION TO THE WEBSITE.
   §  2.  This  act shall take effect on the ninetieth day after it shall
 have become a law. Effective immediately, the addition, amendment and/or
 repeal of any rule or regulation necessary  for  the  implementation  of
 this  act  on its effective date are authorized to be made and completed
 on or before such effective date.