S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   5857
 
                        2021-2022 Regular Sessions
 
                             I N  S E N A T E
 
                              March 19, 2021
                                ___________
 
 Introduced  by  Sen.  COMRIE -- read twice and ordered printed, and when
   printed to be committed to the Committee on Health
 
 AN ACT to amend the public  health  law,  in  relation  to  establishing
   protocols for the handling of stillbirths by healthcare facilities and
   establishing a stillbirth research database

   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:
 
   Section 1. Section 206 of the public health law is amended by adding a
 new subdivision 31 to read as follows:
   31. (A) THE COMMISSIONER, IN CONSULTATION  WITH  THE  STATE  BOARD  OF
 MEDICAL  EXAMINERS,  THE  NEW YORK BOARD OF NURSING, THE STATE BOARD FOR
 PSYCHOLOGY, AND THE STATE BOARD  FOR  SOCIAL  WORK,  SHALL  DEVELOP  AND
 PRESCRIBE  BY  REGULATION  COMPREHENSIVE  POLICIES  AND PROCEDURES TO BE
 FOLLOWED BY HEALTH CARE FACILITIES THAT  PROVIDE  BIRTHING  AND  NEWBORN
 CARE SERVICES IN THE STATE WHEN A STILLBIRTH OCCURS.
   (B)  THE  COMMISSIONER  SHALL REQUIRE AS A CONDITION OF LICENSURE THAT
 EACH HEALTH CARE FACILITY  IN  THE  STATE  THAT  PROVIDES  BIRTHING  AND
 NEWBORN  CARE  SERVICES ADHERE TO THE POLICIES AND PROCEDURES PRESCRIBED
 IN THIS SUBDIVISION. THE POLICIES AND PROCEDURES  SHALL  INCLUDE,  AT  A
 MINIMUM:
   (I)  PROTOCOLS  FOR ASSIGNING PRIMARY RESPONSIBILITY TO ONE PHYSICIAN,
 WHO SHALL COMMUNICATE THE CONDITION OF THE FETUS TO THE MOTHER AND FAMI-
 LY, AND INFORM AND COORDINATE STAFF TO ASSIST WITH LABOR, DELIVERY,  AND
 POSTMORTEM PROCEDURES;
   (II)  GUIDELINES TO ASSESS A FAMILY'S LEVEL OF AWARENESS AND KNOWLEDGE
 REGARDING THE STILLBIRTH;
   (III) THE ESTABLISHMENT OF A BEREAVEMENT CHECKLIST,  AND  AN  INFORMA-
 TIONAL  PAMPHLET  TO BE GIVEN TO A FAMILY EXPERIENCING A STILLBIRTH THAT
 INCLUDES INFORMATION ABOUT FUNERAL AND CREMATION OPTIONS;
   (IV) PROVISION OF ONE-ON-ONE NURSING CARE  FOR  THE  DURATION  OF  THE
 MOTHER'S STAY AT THE FACILITY;
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
              

                                                            LBD06288-01-1

 S. 5857                             2
 
   (V)  TRAINING OF PHYSICIANS, NURSES, PSYCHOLOGISTS, AND SOCIAL WORKERS
 TO ENSURE THAT INFORMATION IS PROVIDED TO THE MOTHER AND FAMILY  EXPERI-
 ENCING  A  STILLBIRTH IN A SENSITIVE MANNER, INCLUDING INFORMATION ABOUT
 WHAT TO EXPECT, THE AVAILABILITY OF GRIEF COUNSELING, THE OPPORTUNITY TO
 DEVELOP  A  PLAN  OF CARE THAT MEETS THE FAMILY'S SOCIAL, RELIGIOUS, AND
 CULTURAL NEEDS, AND THE IMPORTANCE OF AN AUTOPSY AND THOROUGH EVALUATION
 OF THE FETUS;
   (VI) BEST PRACTICES TO PROVIDE PSYCHOLOGICAL AND EMOTIONAL SUPPORT  TO
 THE MOTHER AND FAMILY FOLLOWING A STILLBIRTH, INCLUDING REFERRING TO THE
 FETUS BY NAME, AND OFFERING THE FAMILY THE OPPORTUNITY TO CUT THE UMBIL-
 ICAL CORD, HOLD THE BABY WITH PRIVACY AND WITHOUT TIME RESTRICTIONS, AND
 PREPARE  A  MEMORY  BOX  WITH KEEPSAKES, SUCH AS A HANDPRINT, FOOTPRINT,
 BLANKET, BRACELET, LOCK OF HAIR, AND  PHOTOGRAPHS,  AND  PROVISIONS  FOR
 RETAINING  THE  KEEPSAKES FOR ONE YEAR IF THE FAMILY CHOOSES NOT TO TAKE
 THEM AT DISCHARGE;
   (VII) PROTOCOLS TO ENSURE THAT THE PHYSICIAN ASSIGNED PRIMARY  RESPON-
 SIBILITY  FOR  COMMUNICATING WITH THE FAMILY DISCUSSES THE IMPORTANCE OF
 AN AUTOPSY FOR THE FAMILY, INCLUDING THE SIGNIFICANCE OF  AUTOPSY  FIND-
 INGS  ON  FUTURE  PREGNANCIES  AND  THE  SIGNIFICANCE THAT DATA FROM THE
 AUTOPSY MAY HAVE FOR OTHER FAMILIES;
   (VIII) PROTOCOLS TO ENSURE COORDINATED  VISITS  TO  THE  FAMILY  BY  A
 HOSPITAL  STAFF  TRAINED  TO  ADDRESS THE PSYCHOSOCIAL NEEDS OF A FAMILY
 EXPERIENCING A STILLBIRTH, PROVIDE GUIDANCE IN THE BEREAVEMENT  PROCESS,
 ASSIST  WITH COMPLETING ANY FORMS REQUIRED IN CONNECTION WITH THE STILL-
 BIRTH AND AUTOPSY, AND OFFER THE FAMILY THE OPPORTUNITY TO MEET WITH THE
 HOSPITAL CHAPLAIN OR OTHER INDIVIDUAL FROM THE FAMILY'S RELIGIOUS COMMU-
 NITY; AND
   (IX) GUIDELINES FOR EDUCATING HEALTH CARE PROFESSIONALS  AND  HOSPITAL
 STAFF ON CARING FOR FAMILIES AFTER STILLBIRTH.
   §  2. Subdivision 1 of section 201 of the public health law is amended
 by adding three new paragraphs (y), (z) and (aa) to read as follows:
   (Y) ESTABLISH A FETAL DEATH  EVALUATION  PROTOCOL,  WHICH  A  HOSPITAL
 LICENSED  SHALL  FOLLOW  IN COLLECTING DATA RELEVANT TO EACH STILLBIRTH.
 THE INFORMATION REQUIRED TO BE  COLLECTED  SHALL  INCLUDE,  BUT  NOT  BE
 LIMITED TO:
   (I) THE RACE, AGE OF THE MOTHER, MATERNAL AND PATERNAL FAMILY HISTORY,
 COMORBIDITIES,  PRENATAL  CARE  HISTORY, ANTEPARTUM FINDINGS, HISTORY OF
 PAST OBSTETRIC COMPLICATIONS, EXPOSURE  TO  VIRAL  INFECTIONS,  SMOKING,
 DRUG  AND  ALCOHOL  USE,  FETAL GROWTH RESTRICTION, PLACENTAL ABRUPTION,
 CHROMOSOMAL AND GENETIC ABNORMALITIES OBTAINED  PRE-DELIVERY,  INFECTION
 IN  PREMATURE FETUS, CORD ACCIDENT, INCLUDING EVIDENCE OF OBSTRUCTION OR
 CIRCULATORY COMPROMISE, HISTORY  OF  THROMBOEMBOLISM,  AND  WHETHER  THE
 MOTHER GAVE BIRTH BEFORE; AND
   (II)  DOCUMENTATION  OF THE EVALUATION OF A STILLBORN FETUS, PLACENTA,
 AND CYTOLOGIC SPECIMEN THAT CONFORM TO THE STANDARDS ESTABLISHED BY  THE
 AMERICAN  COLLEGE  OF OBSTETRICIANS AND GYNECOLOGISTS AND MEET ANY OTHER
 REQUIREMENTS DEEMED BY THE COMMISSIONER AS NECESSARY, INCLUDING, BUT NOT
 LIMITED TO, THE FOLLOWING COMPONENTS:
   (A) IF THE PARENTS CONSENT TO A COMPLETE AUTOPSY: THE  WEIGHT  OF  THE
 FETUS  AND PLACENTA, HEAD CIRCUMFERENCE, LENGTH OF FETUS, FOOT LENGTH IF
 STILLBIRTH OCCURRED BEFORE TWENTY-THREE WEEKS OF GESTATION, AND NOTATION
 OF ANY DYSMORPHIC FEATURE; PHOTOGRAPH OF THE  WHOLE  BODY,  FRONTAL  AND
 PROFILE  OF FACE, EXTREMITIES AND PALMS, CLOSE-UP OF ANY SPECIFIC ABNOR-
 MALITIES; EXAMINATION OF THE PLACENTA AND UMBILICAL CORD; AND GROSS  AND
 MICROSCOPIC EXAMINATION OF MEMBRANES AND UMBILICAL CORD; OR

 S. 5857                             3
 
   (B) IF THE PARENTS DO NOT CONSENT TO A COMPLETE AUTOPSY, AN EVALUATION
 OF  A  FETUS AS SET FORTH IN CLAUSE (A) OF THIS SUBPARAGRAPH, AND APPRO-
 PRIATE ALTERNATIVES TO A COMPLETE AUTOPSY, INCLUDING A  PLACENTAL  EXAM-
 INATION,  EXTERNAL  EXAMINATION,  SELECTED  BIOPSIES,  X-RAYS,  MRI, AND
 ULTRASOUND.
   (Z)  SHALL ESTABLISH AND MAINTAIN A DATABASE THAT CONTAINS A CONFIDEN-
 TIAL RECORD OF ALL DATA OBTAINED  PURSUANT  TO  PARAGRAPH  (Y)  OF  THIS
 SUBDIVISION.  THE DATA SHALL BE MADE AVAILABLE TO THE PUBLIC THROUGH THE
 DEPARTMENT WEBSITE, EXCEPT THAT NO DATA SHALL  IDENTIFY  ANY  PERSON  TO
 WHOM THE DATA RELATE.
   (AA)  SHALL  EVALUATE  THE  DATA OBTAINED PURSUANT TO PARAGRAPH (Y) OF
 THIS SUBDIVISION FOR PURPOSES OF IDENTIFYING THE CAUSES OF, AND WAYS  TO
 PREVENT,  STILLBIRTHS,  AND  MAY CONTRACT WITH A THIRD PARTY, INCLUDING,
 BUT NOT LIMITED TO, A PUBLIC INSTITUTION  OF  HIGHER  EDUCATION  IN  THE
 STATE OR A FOUNDATION, TO UNDERTAKE THE EVALUATION.
   §  3. This act shall take effect sixty days after it shall have become
 a law; provided, however, that no later than five years after the effec-
 tive date of this act, the commissioner of health shall  report  to  the
 governor,  and  to  the  legislature,  on the findings of the evaluation
 required pursuant to section two of this act, and shall include  in  the
 report  any recommendations for legislative action that the commissioner
 deems appropriate. Effective immediately the addition, amendment  and/or
 repeal  of  any  rule  or regulation necessary for the implementation of
 this act on its effective date are authorized to be made  on  or  before
 such date.