S T A T E O F N E W Y O R K
________________________________________________________________________
900
2021-2022 Regular Sessions
I N S E N A T E
(PREFILED)
January 6, 2021
___________
Introduced by Sen. RIVERA -- read twice and ordered printed, and when
printed to be committed to the Committee on Rules
AN ACT to amend the public health law, in relation to the confidentiali-
ty of contact tracing information
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. Sections 2180, 2181 and 2182 of the public health law, as
added by a chapter of the laws of 2020, amending the public health law
relating to the confidentiality of contact tracing information, as
proposed in legislative bills numbers S.8450-C and A.10500-C, are
amended to read as follows:
§ 2180. Definitions. As used in this title the following terms shall
have the following meanings:
1. "Contact tracing" means COVID-19 case investigation and identifica-
tion of [principal] CASE individuals and contact individuals.
2. (A) "Contact tracer" and "contact tracing entity" means an individ-
ual or entity employed by or under contract with the state, a local
government, a state or local governmental entity, or an agent thereof,
to conduct contact tracing, engage in contact tracing, or receive
contact tracing information.
(B) A CONTACT TRACER OR CONTACT TRACING ENTITY SHALL NOT INCLUDE A
SERVICE PROVIDER THAT IS A NON-GOVERNMENTAL ENTITY THAT IS EMPLOYED BY
OR UNDER CONTRACT WITH A CONTACT TRACING ENTITY OR AN AGENT THEREOF,
THAT RECEIVES, TRANSMITS, MAINTAINS, STORES, OR HOSTS CONTACT TRACING
INFORMATION AT THE DIRECTION OF A CONTACT TRACER OR CONTACT TRACING
ENTITY SO LONG AS SUCH SERVICE PROVIDER'S ACCESS TO THE INFORMATION IS
EXCLUSIVELY LIMITED TO THE MAINTENANCE OF THE INFORMATION AND THE
CONTACT TRACER OR CONTACT TRACING ENTITY HAS THE ABILITY TO DELETE AND
MANAGE CONTACT TRACING INFORMATION AS PROVIDED BY THIS CHAPTER, LAW,
RULES OR REGULATIONS. A SERVICE PROVIDER UNDER THIS PARAGRAPH SHALL BE
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD07194-01-1
S. 900 2
REFERRED TO IN THIS TITLE AS A "DESIGNATED NON-GOVERNMENTAL ENTITY." A
SERVICE PROVIDER THAT DOES NOT MEET THE REQUIREMENTS OF THIS PARAGRAPH
AND WOULD OTHERWISE BE SUBJECT TO PARAGRAPH (A) OF THIS SUBDIVISION
SHALL BE A CONTACT TRACING ENTITY.
3. "Contact tracing information" means any information that includes
or can reveal the identity of any [principal] CASE individual or contact
individual, and any COVID-19-related information or test results,
received or collected for the purpose or in the course of contact trac-
ing.
4. "Contact individual" means an individual who has or may have come
in contact with a [principal] CASE individual or who has or may have
been exposed to and possibly infected with COVID-19.
5. "[Principal] CASE individual" means an individual with a confirmed
or probable diagnosis of COVID-19.
6. "COVID-19" means infection with or the disease caused by the severe
acute respiratory syndrome coronavirus 2 (SARS-CoV-2).
7. "Immigration authority" means any entity, officer, employee, or
government employee or agent thereof charged with or engaged in enforce-
ment of the federal Immigration and Nationality Act, including the
United States Immigration and Customs Enforcement, UNITED STATES DEPART-
MENT OF HOMELAND SECURITY, or United States Customs and Border
Protection, OR AGENT, CONTRACTOR OR EMPLOYEE THEREOF, or any successor
legislation or entity.
8. "De-identified" means, in relation to contact tracing information,
that the information cannot identify or be made to identify or be asso-
ciated with a particular individual, directly or indirectly and is
subject to technical safeguards and policies and procedures that prevent
re-identification, whether intentionally or unintentionally, of any
individual.
9. "Law enforcement agent or entity" means any governmental entity or
public servant, or agent, contractor or employee thereof, authorized to
investigate, prosecute, or make an arrest for a criminal or civil
offense (EXCEPT A DESIGNATED CIVIL OFFENSE), or engaged in any such
activity, but shall not mean the department, the commissioner, a health
district, a county department of health, a county health commissioner, a
local board of health, a local health officer, the department of health
and mental hygiene of the city of New York, or the commissioner of the
department of health and mental hygiene of the city of New York. AS
USED IN THIS SUBDIVISION, "DESIGNATED CIVIL OFFENSE" MEANS A CIVIL
OFFENSE OR OFFENSES DESIGNATED BY THE COMMISSIONER (OR THE COMMISSIONER
OF THE NEW YORK CITY DEPARTMENT OF HEALTH AND MENTAL HYGIENE IN THE CASE
OF CONTACT TRACING INFORMATION COLLECTED BY OR UNDER AUTHORITY OF THE
NEW YORK CITY DEPARTMENT OF HEALTH AND MENTAL HYGIENE OR THE NEW YORK
CITY HEALTH AND HOSPITALS CORPORATION).
10. "Support" means resources or services provided to an individual to
enable such individual to safely quarantine or isolate, including
grocery, meal or pharmacy delivery, laundry services, child or elder
care, pet walking, assistance with telephone, internet, or other commu-
nication services or devices, health and mental health services, legal
services, provision of appropriate living space for individuals who
cannot isolate or quarantine at home, and income replacement. "Support"
may also include support provided to other individuals for whom the
individual commonly provides those resources or services.
11. "Permitted purpose" means:
(a) disclosure to appropriate health care providers or their personnel
for the purpose of the clinical diagnosis, care or treatment of the
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[principal] CASE individual or contact individual who is the subject of
the information, where an emergency exists and the individual is in
immediate need of medical attention and an attempt to secure consent
would result in delay of treatment which would increase the risk to the
individual's life or health;
(b) facilitating a legally-authorized public health-related action,
[in relation to a specified principal individual or contact individual,]
where and only to the extent necessary to protect the public health IN
RELATION TO COVID-19; or
(c) [the investigation, prosecution or defense of a civil or legal
action for] USE OR DISCLOSURE OF CONTACT TRACING INFORMATION TO PURSUE A
LEGAL ACTION IN RELATION TO a violation of this title; provided that
DISCLOSURE SHALL BE SUBJECT TO IN CAMERA REVIEW AND APPROVAL BY THE
COURT, AND, if the use is initiated by a party other than the [princi-
pal] CASE individual or contact individual who is the subject of the
contact tracing information, the information must be highly material and
relevant for the purpose.
§ 2181. COVID-19 contact tracing; confidentiality. 1. (a) All contact
tracing information shall be kept confidential by any contact tracer
[and], contact tracing entity, OR DESIGNATED NON-GOVERNMENTAL ENTITY and
may not be disclosed except as necessary to carry out contact tracing or
a permitted purpose. A DESIGNATED NON-GOVERNMENTAL ENTITY MAY ONLY ACT
IN RELATION TO CONTACT TRACING INFORMATION AS EXPLICITLY AUTHORIZED BY
THIS TITLE.
(b) Where a contact tracer or contact tracing entity discloses contact
tracing information for a permitted purpose, the contact tracer or
contact tracing entity shall make a record of the disclosure, including
to whom it was made AND WHEN IT WAS MADE, which shall be part of the
contact tracing information.
(C) NOTHING IN THIS TITLE PROHIBITS OTHERWISE LAWFUL VOLUNTARY
REPORTING, AT THE DISCRETION OF THE CONTACT TRACER, REASONABLY AND IN
GOOD FAITH: (I) TO THE STATEWIDE CENTRAL REGISTRY UNDER TITLE SIX OF
ARTICLE SIX OF THE SOCIAL SERVICES LAW, ADULT PROTECTIVE SERVICES UNDER
TITLES ONE AND TWO OF ARTICLE NINE-B OF THE SOCIAL SERVICES LAW, OR THE
JUSTICE CENTER FOR THE PROTECTION OF PEOPLE WITH SPECIAL NEEDS UNDER
ARTICLE ELEVEN OF THE SOCIAL SERVICES LAW; OR (II) TO A GOVERNMENTAL OR
NON-GOVERNMENTAL EMERGENCY REPORTING SYSTEM (SUCH AS A "911," DOMESTIC
VIOLENCE OR SUICIDE PREVENTION SYSTEM) TO PREVENT IMMINENT RISK OF
INJURY TO ANY PERSON.
(D) THIS TITLE DOES NOT LIMIT DISCLOSURE TO OR BY, OR POSSESSION OR
USE BY, THE CASE INDIVIDUAL OR CONTACT INDIVIDUAL WHO IS THE SUBJECT OF
THE INFORMATION.
2. (a) An individual may waive the confidentiality provided for by
this section, only by a written, informed and voluntary waiver, in plain
language and in a language understandable to the individual making the
waiver, and not part of any other document. The waiver shall state the
scope and limit of the waiver. NO CONTACT TRACER, CONTACT TRACING ENTI-
TY OR GOVERNMENTAL OR NON-GOVERNMENTAL ENTITY MAY SEEK OR ACT IN RELI-
ANCE ON A WAIVER TO DISTRIBUTE, SELL, OR OTHERWISE DISCLOSE IDENTIFIABLE
OR DE-IDENTIFIED DATA TO ANY INDIVIDUAL OR ENTITY. PROVIDED HOWEVER,
NOTHING IN THIS SUBDIVISION SHALL PROHIBIT DISTRIBUTION OR DISCLOSURE
THAT IS OTHERWISE EXPLICITLY AUTHORIZED BY THIS SECTION. If an individ-
ual lacks the capacity to make a waiver, an individual authorized to
consent to health care for the individual, or the individual's legal
representative, may make the waiver. However, a waiver of confidential-
ity is not required to be written if it is solely for the purpose of
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arranging or providing support for the individual who is the subject of
the contact tracing information, PROVIDED THE CONSENT IS INFORMED AND
VOLUNTARY.
(b) A waiver of confidentiality under this section shall only apply
for the purpose of arranging or providing support if the individual who
is the subject of the contact tracing information (OR, IF THE INDIVIDUAL
LACKS THE CAPACITY TO PROVIDE INFORMED CONSENT, AN INDIVIDUAL AUTHORIZED
TO CONSENT TO HEALTH CARE FOR THE INDIVIDUAL, OR THE INDIVIDUAL'S LEGAL
REPRESENTATIVE) provides voluntary informed consent to the arranging or
providing of the support.
3. A disclosure of contact tracing information authorized under this
section shall be limited in scope as to the identity of any individual,
the information to be disclosed, and the party to which disclosure may
be made, and as necessary to achieve the purpose of the disclosure under
this section, and shall not authorize re-disclosure except as explicitly
authorized by the terms of the waiver under this section. However, this
section does not bar disclosure of contact tracing information pertain-
ing to and identifying a [principal] CASE individual or contact individ-
ual by the individual who is identified.
4. (a) This section does not bar otherwise-lawful disclosure,
possession or use of DE-IDENTIFIED contact tracing information, includ-
ing aggregate contact tracing information[, that is de-identified].
Disclosure, possession or use under this subdivision shall only be for a
public health or public health research OR EVALUATION purpose AS DETER-
MINED BY THE COMMISSIONER (OR THE COMMISSIONER OF THE NEW YORK CITY
DEPARTMENT OF HEALTH AND MENTAL HYGIENE IN THE CASE OF CONTACT TRACING
INFORMATION COLLECTED BY OR UNDER AUTHORITY OF THE NEW YORK CITY DEPART-
MENT OF HEALTH AND MENTAL HYGIENE OR THE NEW YORK CITY HEALTH AND HOSPI-
TALS CORPORATION), AND SHALL NOT AUTHORIZE RE-DISCLOSURE OR OTHER USE.
(b) A person or entity may only DISCLOSE, possess or use de-identified
contact tracing information if the person or entity, AND THE PERSON OR
ENTITY TO WHICH IT IS DISCLOSED, maintains technical safeguards and
policies and procedures that prevent re-identification, whether inten-
tional or unintentional, of any individual, as may be required by the
commissioner (or the New York city commissioner of health and mental
hygiene in the case of contact tracing information collected by or under
authority of the New York city department of health and mental hygiene
or the New York city health and hospitals corporation). The commission-
er (or the New York city commissioner as the case may be) shall require
safeguards, policies and procedures under this paragraph as the commis-
sioner deems practicable.
(c) Disclosure, possession and use of de-identified contact tracing
information under this subdivision shall be only pursuant to approval by
the commissioner (or the New York city commissioner of health and mental
hygiene in the case of contact tracing information collected by or under
authority of the New York city department of health and mental hygiene
or the New York city health and hospitals corporation) specifying the
purpose, nature and scope of the disclosure, possession and use and
measures to ensure that it will comply with this section and the terms
of the approval.
5. No law enforcement agent or entity or immigration authority shall
be a contact tracer or contact tracing entity or engage in contact trac-
ing. This subdivision does not bar an individual who is associated with
a law enforcement entity or immigration authority from acting only as a
[principal] CASE individual or contact individual. THIS SUBDIVISION
DOES NOT PREVENT A LAW ENFORCEMENT AGENT OR ENTITY FROM ASSISTING IN A
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PERMITTED USE UNDER PARAGRAPH (B) OF SUBDIVISION ELEVEN OF SECTION TWEN-
TY-ONE HUNDRED EIGHTY OF THIS TITLE.
6. No contact tracer [or], contact tracing entity OR DESIGNATED NON-
GOVERNMENTAL ENTITY may provide contact tracing information to a law
enforcement agent [or], entity or immigration authority, OR ANY INDIVID-
UAL OR ENTITY OTHER THAN THE CONTACT TRACING ENTITY FROM WHICH IT
RECEIVED THE INFORMATION, EXCEPT AS EXPLICITLY AUTHORIZED BY THIS TITLE.
Without consent under subdivision two of this section, contact tracing
information and any evidence derived therefrom shall not be subject to
or provided in response to any legal process or be admissible for any
purpose in any judicial or administrative action or proceeding. However,
this subdivision does not restrict providing information, relating to a
specified [principal] CASE individual or contact individual, where and
only to the extent necessary for a permitted purpose.
7. (a) CONTACT TRACING ENTITIES SHALL ESTABLISH APPROPRIATE ADMINIS-
TRATIVE, TECHNICAL AND PHYSICAL SAFEGUARDS, POLICIES AND PROCEDURES THAT
ENSURE THE SECURITY OF CONTACT TRACING INFORMATION UNDER THE ENTITY'S
JURISDICTION. THE SAFEGUARDS, POLICIES AND PROCEDURES MUST ENSURE
CONTACT TRACING INFORMATION IS ENCRYPTED AND PROTECTED AT LEAST AS MUCH
AS OR MORE THAN OTHER CONFIDENTIAL INFORMATION UNDER THE ENTITY'S JURIS-
DICTION. ALL STORAGE OF CONTACT TRACING INFORMATION SHALL MEET THE
REQUIREMENTS OF THIS TITLE. The commissioner (or the New York city
commissioner of health and mental hygiene in the case of contact tracing
information collected by or under authority of the New York city depart-
ment of health and mental hygiene or the New York city health and hospi-
tals corporation) shall make regulations AS REASONABLY NECESSARY to
require that contact tracing information possessed, used or under the
control of a contact tracer or contact tracing entity shall be subject
to technical safeguards [and], policies and procedures for storage,
transmission, use and protection of the information. The regulations
shall prevent possession, use or disclosure of the contact tracing
information not permitted by this title, and shall be at least as or
more protective than the safeguards, policies and procedures the commis-
sioner (or the New York city commissioner as the case may be) provides
for other confidential information.
(b) This paragraph applies [where contact tracing information is
possessed or controlled by a contact tracer or contact tracing entity
that is a non-governmental individual or entity employed by or under
contract with a governmental entity, or an agent thereof] TO A CONTACT
TRACER OR CONTACT TRACING ENTITY THAT IS A NON-GOVERNMENTAL INDIVIDUAL
OR ENTITY EMPLOYED BY OR UNDER CONTRACT WITH A GOVERNMENTAL ENTITY, OR
AN AGENT THEREOF. Within [thirty] SIXTY days of collecting or receiving
the contact tracing information, the [non-governmental individual or]
entity shall (i) remove information from its possession or control and
deliver it to the appropriate governmental contact tracing entity OR A
DESIGNATED NON-GOVERNMENTAL ENTITY SPECIFIED BY THE GOVERNMENTAL CONTACT
TRACING ENTITY, retaining no copy of it; (ii) expunge the information
from its possession or control; or (iii) de-identify the information.
However, the expungement or de-identification of particular contact
tracing information may be postponed for up to fifteen days AFTER THE
INITIAL SIXTY DAY PERIOD while the contact tracer or contact tracing
entity is actively engaged in contact tracing using that information,
provided that the [principal] CASE individual or contact individual to
whom it pertains gives voluntary informed consent. The disclosure,
possession and use of the de-identified contact tracing information
shall be subject to subdivision four of this section.
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§ 2182. Regulations. The commissioner shall make regulations [imple-
menting] AS REASONABLY NECESSARY TO IMPLEMENT this title.
§ 2. This act shall take effect on the same date and in the same
manner as a chapter of the laws of 2020, amending the public health law
relating to the confidentiality of contact tracing information, as
proposed in legislative bills numbers S.8450-C and A.10500-C, takes
effect.