S T A T E O F N E W Y O R K
________________________________________________________________________
2757
2009-2010 Regular Sessions
I N S E N A T E
March 2, 2009
___________
Introduced by Sens. LAVALLE, FUSCHILLO, LARKIN, MORAHAN -- read twice
and ordered printed, and when printed to be committed to the Committee
on Higher Education
AN ACT to amend the education law, in relation to licensing of genetic
counselors
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
Section 1. The education law is amended by adding a new article 142
to read as follows:
ARTICLE 142
GENETIC COUNSELING
SECTION 7050. INTRODUCTION.
7051. DEFINITIONS.
7052. THE PRACTICE OF GENETIC COUNSELING.
7053. STATE COMMITTEE FOR GENETIC COUNSELING.
7054. REQUIREMENTS FOR A PROFESSIONAL LICENSE.
7055. EXEMPT PERSONS.
7056. LIMITED PERMITS.
S 7050. INTRODUCTION. THIS ARTICLE APPLIES TO THE LICENSING OF GENETIC
COUNSELORS. THE GENERAL PROVISIONS FOR ALL PROFESSIONS CONTAINED IN
ARTICLE ONE HUNDRED THIRTY OF THIS TITLE APPLY TO THIS ARTICLE.
S 7051. DEFINITIONS. AS USED IN THIS ARTICLE:
1. THE TERM "GENETIC COUNSELOR" SHALL MEAN A HEALTH PROFESSIONAL WHO
IS ACADEMICALLY AND CLINICALLY PREPARED TO PROVIDE GENETIC COUNSELING
SERVICES TO INDIVIDUALS AND FAMILIES SEEKING INFORMATION ABOUT THE
OCCURRENCE, RISK OF OCCURRENCE OR RECURRENCE, OF A GENETIC OR HEREDITARY
CONDITION OR BIRTH DEFECT.
2. THE TERM "LICENSED GENETIC COUNSELOR" SHALL MEAN A GENETIC COUNSE-
LOR LICENSED PURSUANT TO THIS ARTICLE.
S 7052. THE PRACTICE OF GENETIC COUNSELING. 1. THE "PRACTICE OF GENET-
IC COUNSELING" SHALL MEAN THE COMMUNICATION TO AND EDUCATION OF CLIENTS,
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD02805-01-9
S. 2757 2
THEIR FAMILIES, OTHER HEALTHCARE PROFESSIONALS AND THE GENERAL PUBLIC
WITH REGARDS TO GENETIC TESTING, INDIVIDUAL FAMILY HISTORIES, OR OTHER
GENETIC, MEDICAL, AND TECHNICAL INFORMATION ASSOCIATED WITH THE OCCUR-
RENCE, RISK OF OCCURRENCE OR RECURRENCE, OF A GENETIC OR HEREDITARY
CONDITION OR BIRTH DEFECT IN A COMPREHENSIVE, UNDERSTANDABLE, ETHICAL
MANNER. A PRACTITIONER OF GENETIC COUNSELING SHALL SEEK TO PROMOTE
DECISION-MAKING IN AN UNBIASED NON-COERCIVE MANNER WHICH RESPECTS THE
INDIVIDUAL'S CULTURE, LANGUAGE, TRADITION, LIFESTYLE, RELIGION, BELIEFS
AND VALUES. GENETIC COUNSELING SHALL INCLUDE, BUT NOT BE LIMITED TO,
THE FOLLOWING:
(A) ELICITING INDIVIDUAL AND FAMILY MEDICAL, DEVELOPMENTAL, AND REPRO-
DUCTIVE HISTORIES;
(B) DETERMINING THE LIKELY COURSE OR MODE OF INHERITANCE AND RISK OF
OCCURRENCE OR RECURRENCE OF A GENETIC OR HEREDITARY CONDITION OR BIRTH
DEFECT;
(C) EXPLAINING THE RESULTS OF GENETIC TESTS AND INTERPRETING AND
EXPLAINING OTHER DIAGNOSTIC STUDIES;
(D) IDENTIFYING EMOTIONAL, SOCIAL, EDUCATIONAL, AND CULTURAL ISSUES
RELATED SOLELY TO GENETIC TESTING AND INFORMATION;
(E) FACILITATING INFORMED DECISION-MAKING ABOUT GENETIC TESTING AND
CONVEYING THE RESULTS OF GENETIC TESTS WITH FAMILY MEMBERS;
(F) COMMUNICATING DETAILED GENETIC INFORMATION TO DIVERSE AUDIENCES
CLEARLY AND CONCISELY WHILE BRIDGING CULTURAL, SOCIOECONOMIC AND EDUCA-
TIONAL DIFFERENCES; AND
(G) IDENTIFYING AND FACILITATING ACCESS TO RESOURCES THAT PROVIDE
COMMUNITY OUTREACH, EDUCATIONAL, FINANCIAL, MEDICAL AND PSYCHOSOCIAL
SUPPORT, AND ADVOCACY.
2. NOTHING IN THIS ARTICLE SHALL BE CONSTRUED TO AUTHORIZE A LICENSED
GENETIC COUNSELOR TO DIAGNOSE OR TREAT ANY GENETIC DISEASE OR CONDITION.
LICENSED GENETIC COUNSELORS ARE REQUIRED TO ENSURE THAT PATIENT/CLIENT
CONFIDENTIALITY AND INFORMED CONSENT ARE MAINTAINED CONSISTENT WITH
EXISTING FEDERAL AND STATE LAW.
3. PRACTICE OF GENETIC COUNSELING, AND USE OF THE TITLES "GENETIC
COUNSELOR" AND "LICENSED GENETIC COUNSELOR" AND THE USE OF THE LETTERS
"L.G.C." AFTER THE NAME SHALL BE RESERVED EXCLUSIVELY TO PERSONS
LICENSED PURSUANT TO THIS ARTICLE. ONLY A PERSON LICENSED OR EXEMPT
UNDER THIS ARTICLE SHALL PRACTICE GENETIC COUNSELING OR USE THE TITLE
"GENETIC COUNSELOR". ONLY A PERSON LICENSED UNDER THIS ARTICLE SHALL USE
THE TITLE "LICENSED GENETIC COUNSELOR" OR ANY OTHER DESIGNATION TENDING
TO IMPLY THAT A PERSON IS LICENSED TO PRACTICE GENETIC COUNSELING.
S 7053. STATE COMMITTEE FOR GENETIC COUNSELING. 1. A STATE COMMITTEE
FOR GENETIC COUNSELING SHALL BE APPOINTED BY THE BOARD OF REGENTS UPON
THE RECOMMENDATION OF THE COMMISSIONER AND SHALL ASSIST ON MATTERS OF
LICENSURE AND PROFESSIONAL CONDUCT IN ACCORDANCE WITH SECTION SIXTY-FIVE
HUNDRED EIGHT OF THIS TITLE. NOTWITHSTANDING THE PROVISIONS OF SECTION
SIXTY-FIVE HUNDRED EIGHT OF THIS TITLE, THE COMMITTEE SHALL ASSIST THE
BOARD FOR MEDICINE SOLELY IN GENETIC COUNSELING MATTERS. MEMBERS OF THE
FIRST COMMITTEE NEED NOT BE LICENSED PRIOR TO THEIR APPOINTMENT TO SUCH
COMMITTEE. THE TERMS OF THE FIRST APPOINTED MEMBERS SHALL BE STAGGERED
SO THAT THREE MEMBERS ARE APPOINTED FOR THREE YEARS, FOUR MEMBERS ARE
APPOINTED FOR FOUR YEARS AND TWO MEMBERS ARE APPOINTED FOR FIVE YEARS.
AN EXECUTIVE SECRETARY TO THE COMMITTEE SHALL BE APPOINTED BY THE BOARD
OF REGENTS ON THE RECOMMENDATIONS OF THE COMMISSIONER.
2. THE COMMITTEE SHALL CONSIST OF NINE INDIVIDUALS, TO BE COMPOSED OF
THE FOLLOWING:
S. 2757 3
(A) SIX LICENSED GENETIC COUNSELORS WITH A MINIMUM OF FIVE YEARS EXPE-
RIENCE, INCLUDING AT LEAST THREE YEARS OF FIELD EXPERIENCE WORKING WITH
PATIENTS OR THE GENERAL PUBLIC IN THE FIELD OF GENETIC COUNSELING;
(B) ONE LICENSED PHYSICIAN;
(C) ONE LICENSED PSYCHIATRIST; AND
(D) A REPRESENTATIVE OF THE PUBLIC AT LARGE.
3. BOARD MEMBERS SHALL BE APPOINTED FOR TERMS OF FIVE YEARS. VACANCIES
SHORT OF A FULL TERM SHALL BE FILLED TO COMPLETE THE TIME REMAINING IN
THE TERM OF THE MEMBER VACATING.
S 7054. REQUIREMENTS FOR A PROFESSIONAL LICENSE. TO QUALIFY FOR A
LICENSE AS A "LICENSED GENETIC COUNSELOR", AN APPLICANT SHALL FULFILL
THE FOLLOWING REQUIREMENTS:
1. APPLICATION: FILE AN APPLICATION WITH THE DEPARTMENT;
2. EDUCATION: HAVE RECEIVED A MASTER'S OR DOCTORAL DEGREE IN GENETIC
COUNSELING FROM A PROGRAM REGISTERED BY THE DEPARTMENT, OR DETERMINED BY
THE DEPARTMENT TO BE THE SUBSTANTIAL EQUIVALENT, IN ACCORDANCE WITH THE
COMMISSIONER'S REGULATIONS. APPROPRIATE COURSEWORK SHALL BE DETERMINED
IN ACCORDANCE WITH THE COMMISSIONER'S REGULATIONS ON RECOMMENDATIONS OF
THE STATE COMMITTEE FOR GENETIC COUNSELING.
3. EXPERIENCE: HAVE GENETIC COUNSELING EXPERIENCE SATISFACTORY TO THE
DEPARTMENT AS DEFINED IN SECTION SEVEN THOUSAND FIFTY-THREE OF THIS
ARTICLE AND IN ACCORDANCE WITH THE COMMISSIONER'S REGULATIONS. SUCH
EXPERIENCE SHALL INCLUDE, BUT NOT BE LIMITED TO REQUIRED DOCUMENTATION
OF SUPERVISED CASE-WORK AND OTHER EDUCATIONAL EXPERIENCES DEEMED ACCEPT-
ABLE TO THE DEPARTMENT.
4. EXAMINATION: PASS AN EXAMINATION FOR CERTIFICATION IN ACCORDANCE
WITH THE COMMISSIONER'S REGULATIONS, IN GENETIC COUNSELING AND/OR GENER-
AL GENETICS;
5. AGE: BE AT LEAST TWENTY-ONE YEARS OF AGE;
6. CHARACTER: BE OF GOOD MORAL CHARACTER AS DETERMINED BY THE DEPART-
MENT;
7. FEES: PAY A FEE OF THREE HUNDRED DOLLARS TO THE DEPARTMENT FOR AN
INITIAL LICENSE AND TWO HUNDRED DOLLARS FOR EACH SUBSEQUENT RE-REGISTRA-
TION OF A LICENSE; AND
8. CONTINUING EDUCATION: AT THE TIME OF RE-REGISTRATION WITH THE
DEPARTMENT, EACH APPLICANT SHALL PRESENT SATISFACTORY DOCUMENTATION TO
THE STATE COMMITTEE FOR GENETIC COUNSELING THAT SINCE LAST REGISTRATION
THEY ATTENDED THE EDUCATION PROGRAMS CONDUCTED BY THE AMERICAN BOARD OF
GENETIC COUNSELING OR THE EQUIVALENT OF SUCH EDUCATIONAL PROGRAMS AS
APPROVED BY THE STATE COMMITTEE FOR GENETIC COUNSELING IN ACCORDANCE
WITH THE COMMISSIONER'S REGULATIONS. THE DEPARTMENT SHALL TRIENNIALLY
RE-REGISTER A LICENSE UPON RECEIPT OF A RE-REGISTRATION APPLICATION.
THE DEPARTMENT IS AUTHORIZED AND DIRECTED, IN CONSULTATION WITH THE
STATE COMMITTEE ESTABLISHED IN SECTION SEVEN THOUSAND FIFTY-THREE OF
THIS ARTICLE, TO ESTABLISH CRITERIA AS A CONDITION OF LICENSURE RE-RE-
GISTRATION FOR CONTINUING EDUCATION OF GENETIC COUNSELORS INCLUDING,
BUT NOT LIMITED TO THE NUMBER OF HOURS AND/OR EDUCATION UNITS NECESSARY
TO COMPLETE CONTINUING EDUCATION REQUIREMENTS.
S 7055. EXEMPT PERSONS. THIS ARTICLE DOES NOT PROHIBIT THE PRACTICE OF
GENETIC COUNSELING BY LICENSED PHYSICIANS OR OTHER LICENSED PROFES-
SIONALS PURSUANT TO TITLE EIGHT OF THIS CHAPTER TO OPERATE WITHIN THE
SCOPE OF THEIR PROFESSION'S LICENSE. SUCH EXEMPT PERSONS ARE PROHIBITED
FROM USING THE TITLE "LICENSED GENETIC COUNSELOR" AS PROVIDED FOR IN
THIS ARTICLE.
S. 2757 4
S 7056. LIMITED PERMITS. PERMITS LIMITED AS TO ELIGIBILITY, PRACTICE
AND DURATION SHALL BE ISSUED BY THE DEPARTMENT TO ELIGIBLE APPLICANTS,
AS FOLLOWS:
1. THE DEPARTMENT MAY ISSUE A LIMITED PERMIT TO AN APPLICANT WHO MEETS
ALL QUALIFICATIONS FOR LICENSURE AS A GENETIC COUNSELOR, EXCEPT THE
EXAMINATION AND/OR EXPERIENCE REQUIREMENTS, IN ACCORDANCE WITH REGU-
LATIONS PROMULGATED BY THE DEPARTMENT.
2. THE DEPARTMENT MAY ISSUE LIMITED PERMITS TO FOREIGN TRAINED GENETIC
COUNSELORS THAT APPLY IF THEY MEET THE REQUIREMENTS FOR LICENSURE PURSU-
ANT TO SECTION SEVEN THOUSAND FIFTY-FOUR OF THIS ARTICLE.
3. LIMITED PERMITS SHALL BE FOR ONE YEAR. LIMITED PERMITS MAY BE
RE-REGISTERED, AT THE DISCRETION OF THE DEPARTMENT, FOR ONE ADDITIONAL
YEAR.
4. AN INDIVIDUAL WITH A LIMITED PERMIT SHALL BE AUTHORIZED TO PRACTICE
GENETIC COUNSELING ONLY UNDER THE SUPERVISION OF A LICENSED GENETIC
COUNSELOR, OR LICENSED PHYSICIAN. SUPERVISION SHALL MEAN THE REVIEW OF
GENETIC COUNSELING AS PROVIDED BY SECTION SEVEN THOUSAND FIFTY-TWO OF
THIS ARTICLE AND CASE MANAGEMENT AS APPROPRIATE THAT INCLUDE REGULAR
CHART REVIEWS OF CLIENTS WITH THE LIMITED PERMITTEE AND THE SUPERVISOR.
5. THE FEE FOR EACH LIMITED PERMIT AND FOR EACH RE-REGISTRATION SHALL
BE TWO HUNDRED DOLLARS.
S 2. Severability. If any clause, sentence, paragraph, section or part
of this act shall be adjudged by any court of competent jurisdiction to
be invalid and after exhaustion of all further judicial review, the
judgment shall not affect, impair or invalidate the remainder thereof,
but shall be confined in its operation to the clause, sentence, para-
graph, section or part of this act directly involved in the controversy
in which the judgment shall have been rendered.
S 3. This act shall take effect immediately; provided, however, that
within two years of the effective date of this act, the addition, amend-
ment and/or repeal of any rule or regulation necessary for the implemen-
tation of this act on its effective date are authorized and directed to
be made and completed on or before such effective date; provided,
further, that with respect to those persons who are licensed under arti-
cle one hundred forty-two of the education law on or before the trienni-
al registration period next succeeding the effective date of this act,
the continuing education requirements set forth in this act need not be
completed until after the second triennial registration period.