* § 2012. Establishment of registry. 1. The department shall establish
a Parkinson's disease registry for the collection of information on the
incidence and prevalence of Parkinson's disease and Parkinsonisms. The
department may consult with Parkinson's disease experts, including
neurologists, patients living with Parkinson's disease, and Parkinson's
disease researchers to assist in the development and implementation of
such registry, and to determine what data shall be collected.

2. All information maintained by the department under the provisions
of this section shall be confidential except as necessary to carry out
the provisions of this section and shall not be released for any other
purpose.

3. The department may enter into an agreement to provide data
collected in the Parkinson's disease registry to the federal Centers for
Disease Control and Prevention, or successor agency, to local health
officers, or health researchers for the study of Parkinson's disease for
public health and research purposes. Data shall be provided in summary,
statistical, aggregate, or other form such that no individual person can
be identified.

4. On or before January first, two thousand twenty-six, the department
shall create and maintain a public website called the "New York state
Parkinson's disease registry" which shall include information on the
incidence and prevalence of Parkinson's disease and Parkinsonisms in the
state by county, and demographic information on affected patients.

* NB Effective March 13, 2025